prostrate PSA INCREASE

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Hi , i am aware there are others with high numbers of PSA , but i’m not aware of when i should be concerned , yes my husband  is 81 and was diagnosed with prostate cancer early 2023 and has been on watch and wait , in January his PSA was 84 and his recent one done end of march is 126 , is that a big increase or average , i ask because as i’ve said before he has refused all treatments, i would welcome your thoughts , 

  • Hello   Thanks for your post - I am so sorry that he is refusing treatment - but is it an informed choice ?  Is he aware of his condition and the consequences ? 84 to 126 is a big increase in less than 3 months.

    So and, please don't take this as being 100% perfect - this is just my understanding of PSA readings which are just an indicator of Prostate Cancer.For a 81 year old male his PSA should be around 5 - 8. Anything above that needs looking at.  Anyone with a PSA of over 100 the chance is that the cancer has left the Prostate and spread to other parts of the body.

    The above is just a "rule of thumb" - My initial PSA was 182 but no spread, however I am a Gleason 9 which is an aggressive cancer and likely to spread - although mine was caught early and my treatment journey started after only 1 week.

    I hope this helps - If I can do anything else for you please let me know.

    Kind Regards - Brian.

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  • hi Millibob, i really appreciate your reply , sadly hubby has also been diagnosed with  Alzimers and gall stones, he was made aware of the illnesses and possible treatments etc ,, the consultant even leant across his desk and Said Mr J,,,,,n  are you aware of the facts im telling you YOU  HAVE GOT PROSTRATE CANCER, My daughter and myself tried to get him to start treatment but he’s refused ,,, and he’s probably forgotten now ,,, . He doesn’t sit comfortably and has bouts of constipation/ diarrhoea and as he puts a discomfort in his tummy ,,,, he’s lost 3 stone and his appetite isn’t good but craves sweets etc, but that could be the alzimers,,,, my daughter has LPA for us both ,,, but that doesn’t mean we can force him to have treatment , thankyou for replying at least i’m more aware ,

    regards and best wishes  Gena     

  • Hi Gean7

    1. Welcome it is great to meet you again today, I am sorry to hear that your husbands PSA has increased like Million states this is a big increase and would need further investigation.
    2. I am sorry to hear that he is still refusing treatment are you able to speak to your GP or medical team for there thoughs??
    3. Are you able to contact the support line here 0808 800 0101, open 7 days a week 8am to 8pm ???
    4. I do hope that this helps please please let me know if there is anything that I can help you with???
    5. Prostate Worrier.
  • Hi Gena. and sorry to hear.

    In answer to your question yes a fair increase but without a MRI scan difficult to say, I presume he doesn't want one?

    Because of his age possibly the easiest way to treat/control this is with hormone therapy because that would at least keep the PSA at a more acceptable level.

    Have they suggested  HT or doing a scan?

    Regards 

    Steve 

  • Hi Gena.

    I remember your previous post and the problems you have. You are in such a difficult situation. Some of your husband's tummy problems could be down to his choosing to eat the wrong things. Sugary foods can become addictive and if he is favouring these over a balanced diet then the gut becomes full of the wrong type of bugs which are necessary to help digestion and can lead to bouts of diarrhoea and constipation. In order to help him why not try and get some Greek yoghurt into him or a probiotic drink which might help rebalance the gut biome.

  • hi Prostrate worrier , ive got an appointment with GP on monday to register as his carer ,,, so i’m hoping to ask some questions then ,,, but the appointment is really a medical on myself which they want me to have every year, thanks for your response, Gena , 

  • hi Grundo , thankyou for replying , he has had an MRi scan ,,, luckily we had a very understanding support nurse and GP who explained to consultant  my husbands reluctance  ,,, and suggested examination scans etc to be done at one appointment  ( or we wouldn’t get him there again ) , he has since had another scan ( my daughter is wonderful and plays the part of bad cop ) which showed no spread to bones but did show gall stones, ,,,,  we get him as far going for blood tests and scans saying we are going for a meal,,,, but ,,  ( you get what i mean ) first it’s hospital ,,, but that’s as far as he’s prepared to go ,,, sadly i think the alzimers is playing a big part in his refusal of treatment ,,, in fact my daughter and i agreed we don’t tell him he’s got it ,,, as we think that would be too much for him , 

    regards Gena 

  • hi Always hope , i do buy the yoghurts etc and i’ve now bought  Evensure drinks ,,,, no more biscuits etc on the grocery list the last 2 weeks ,,, but that has caused out bursts of anger ,,,, i’ll keep persevering with the probiotics etc ,,, and keep my fingers crossed ,,, 

    thanks again , Gena 

  • hi , always hope , i thought i’d replied to you but don’t seem to able to see it , so apologies if i have already done it , i was aware that the sugar certainly wasn’t helping him and cut down on them myself when doing the grocery shopping, but he’s searched to find biscuits etc and got angry when not there, ,,,, i tried him with the  greek yoghurt and probiotics,,, and i’ve now bought the Evensure drinks ,,,in the hope that fill his craving for sweet things ,,,  fingers crossed they will help him , regards Gena 

  • Hi Gena

    So a good contender for Radiotherapy but I presume he wouldn't want that.

    So next time visiting the specialist ask about the HT because  you need to keep that PSA stable or pref going down.

    Patients can last for years on HT sometimes with minimal side effects 

    Good luck

    Steve