Very Sad Daddy's Girl

Hi DaddysGirl and dad Eddie.

Firstly a drop in the PSA is excellent in such a short time and hopefully it will still go down a little further. If it can go below 0.5 it is a good measure of improved prognosis.

It sounds as if the diverticulitis is delaying treatment to the prostate area but was any mention made about SBRT to the distant lymph nodes? It is important to try and get these dealt with as well because the lymphatic system can act as a superhighway for the spread of mets. The combined Aptalutamide and injections should be shrinking them which creates a smaller target to zap.

I have attached a link to a paper specifically on M1a which discusses treatment options which revolve mainly around HT and radiotherapy as the primary options giving the best success rate. Chemotherapy, if used, would only become relevant further down the line.

Please come back with any questions.

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8988794/#:~:text=According%20to%20the%20TNM%20classification,bone%2Fvisceral)%20are%20absent.&text=The%20detection%20of%20M1a%20disease,on%20the%20imaging%20modality%20used.

Hello DaddysGirl9009 

Well the reduced PSA is magic, long may it drop further. It's taken me over 2 years to drop from 182 to 0.33 so he's doing really well.

DaddysGirl9009 said:

with no one to talk to. 

I can appreciate this - you have little support - remember the Community is here 24 hours a day - not only do we do advice about Prostate cancer - you can come on an vent your worries, talk about the off-side rule in football, dress sizes and why a Toastie Loaf is £ 1.40.  There's always some one to talk to here. May I also suggest:

"Maggie's" is a drop in cancer charity - if there's one near you - it's for all the family - not just dad - to find your local centre 0300 123 1801 or www.maggiescentres.org

You can also call our support line for that little bit of extra support on 0808 808 00 00 (8am to 8pm 7 days a week) They are a great bunch and are happy to help.

No one or their family fights cancer alone and we are always here for you both.

If I can do anything else for you please let me know.

Kind Regards - Brian.

Hi Everyone!!

I can't thank you enough for all of your replies and info and kindness. 
This forum is incredible and inspiring and you always find away to cheer me up!

Dad has a meeting with the consultant next weds to see if he is safe to have the radiotherapy or not - fingers crossed he is!

I will defo ask about the SBRT so thank you Millibob x

I think his options maybe lower with it being distant lymph's in between the lungs and in the stomach, however defo worth an ask.

I went to the maggies centre at the marsden last week and it was incredible, such. Beautiful bunch of people that really cheered me up.

i can't thank you enough for being here to support me and I hope all of  your own journeys are going as best as they possibly can too xx 

Hi daddy's girl 

I'm simular to your dad, P.S.A 305 escaped to stomach and  lymph nodes as well to some bones, pelvic, shoulder rib etc (see my profile) diagnosed in March 2021, treatment was hormone injections which brought psa down to 3.5 then onto enzalutamide tablets which brought psa down to 0.007,never given chemo or radiotherapy oncologist said he's keeping these in his back pocket for when I need them., so 3 years down the line I still go to work part time and go abroad 3-4 times a year, so your dad has getting off to a great start with his psa dropping down to a low level, just have faith in the oncologist, your dad is doing really well and I hope for many years to come. 

Hi Hotflushlva, 

Thank you so much for the message and the reassurance it's so nice of you and truely help put a smile on my face today , I'm so glad you are doing well and hope you continue too. 
I'm sure you will get lots of cuddles with your beautiful granddaughter for many years to come!  I hope your knees keep up  for your five aside football :) 

Wishing you and your family lots of luck and happiness! 

Thank you for the lovely reply, wishing you and your family the same. 

Hi Eveyone!

Hope you're all doing well and having a lovely week.

I'm just wondering if there are any vitamins my dad should be taking, or anything he can take to help his fatigue as he is really tired all the time. 
I know I have read exercise is the best thing, however I guess when you're tired it's hard to want to exercise, so it's a bit of a vicious circle - just wanted to see if anyone had any thing that's helped?

Oh also my dad is on Apalutamide and his blood pressure is through the roof, they can't seem to get it down? I'm now worried he may be taken off it or is that normal does anyone know? 

Sorry I always have so many questions!!

P.S his PSA month 4 - 0.21 (down from the 282) I'm hoping a drop this quick is a good thing. 

x

Hi DaddysGirl9009,  firstly great news about the PSA, just brilliant, so the cancer is under control.  I don’t know anything about the high blood pressure, others may be able to help.

As for fatigue, it can be a problem.  Some seem to deal well and brush it off and some of us struggle.  We are all different, so he needs to listen to his body.  I think age also plays a part, at 75 I sometimes don’t want to walk to the shops but generally I try and do 10,000 steps a day.  However if I really push hard, it can knock me out for a couple of days.  It’s a fine balance.  
Personally I am not keen on taking supplements but try and have a varied diet.  Your father will be having regular blood tests, so if anything is lacking it should show, but maybe his GP could advise.  David