New diagnosis

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Not sure where to start

hubby is 66, family history of cancer, 18 months ago requested PSA rang up 10 days later told bloods were normalThis year  had health screen PSA checked called in and told 7.9 referred to Urology but on checking PSA 18 months ago was 10.2 and GP admitted it had been missed!!!

MRI PYRADS 5 M0 N0 biopsy result yesterday Gleason5 + 4 so 9  grade 3. Urologist did not advocate surgery referral to Oncology and PET scan

Im a nurse doesn’t help, everyone says I’m here if you need me sending love doesn’t help I’m reading researching prognoses Gleason 9 4-6 years I am angry as that 18 months of no treatment could have changed his pathway . Hubby is active works 8 hours day no symptoms  awaiting appointments now from Oncology  how  do I keep positive for him he knows all the facts but doesn’t want to talk about it says he wants normality any advice is most welcome thank you

  • My oh has gleeson 9 and n1. He has had radiotherapy and is currently on HT . His oncologist said it was curable.  He had a hard time with urinary issues.  But hopefully this is improving. His psa is now 0.01.

  • Thank you for sharing it is a comfort hearing about others with a Gleason 9, I have felt more settled in the last 2 days knowing there is hope with treatment thanks a million x