Radio therapy is next step

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Hello I shall be undergoing the 5 step radiotherapy treatment soon and was wondering how other peoples experiences were afterwards?

  • Hi Sweetstory and welcome to the club.

    I completed my 20 fractions of Radiotherapy 6 months ago. No problems at all - just listen to what the Radiologists say and follow any advice you have been given regarding eating and drinking and preparation for each visit. If you do that you should sail through it.

    It will give you fatigue but if you are fit(ish) keep up the exercise before, through and after the treatment and you will be fine.

    You can read my journey by clicking on the icon of the beach.

    if you need anything else, just ask - good luck with the treatment.

    Kind Regards

    Brian.

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  • Hi Sweetstory, I can fully agree with Millibob  (Brian) above.

    I completed my 20 fractions of Radiotherapy in March, still on Hormone Therapy for another 16 months,

    I had no problems with the RT just have hot flushes with HT.

    You can read my journey by clicking on the picture of my cat.

    Regards

    Peter 

  • Reassuringly good to hear of your experience, and that of Brian.  Ted is waiting for his planning appointment prior to 20 fractions in September/October.  (We asked about Space OAR gel to protect the rectum, but it isn't NICE approved.) 

  • Hi

    Couldn't agree more with Brian and Peter. I had 37 sessions on the sun bed, and the only problems I had were fatigue and when I chose to ignore the diet recommendations. 

    The whole process takes a big chunk out of your day but fingers crossed it will be worth it.

    Regards

    Stuart

    Trying to get fit again!
  • Hi Sweetstory,

    I am having the SABR 5 fraction RT with the first session scheduled for the 13th September.  If this is before you start yours, I can update this post with my experience if it would help.

    All the best

    Brian

  • Hi Brian 

    That would be great thank you.

    Best of luck 

    Gary

  • Hi 

    As everyone has said, twenty is the norm for us incurables that is, having the treatment is a doddle, you just lay there and the machine does circles round you, when I had mine I used to say when the beam came on “kill it kill it” my way of thinking, I had the runs once in my treatment other than that all went well, as my wife said, who came with me all the time. At the finish when I walked out there was ballon’s next to the bell, her words as she video it “ You ring that bell “ so I did.

    Stay Safe

    Joe

  • Hi Sned

    Just picked this thread up so I thought I'd let you have my experience. I have had a dodgy colon for many years and have had numerous colonoscopies but nothing found. I was very concerned about damage to my rectum with RT and so before signing up for 20treatments I had a discussion with a consultant at the Royal Marsden and specifically asked about the OAR spacer as I had read american literature praising its benefits. I was told not to have it inserted as the benefits were not proven and in rare cases when  it goes wrong, the consequences can result in damage and possible colostomy bag. I appreciate this is only one opinion but I trusted the person talking to me.

    You can see my journey by clicking on the Panda picture, but I will now be on number 18 out of 20 on Monday and so far have only relatively minor issues with bladder and bowel. The imaging RT techniques they use now seem  to have improved the accuracy of the RT, and as long as you manage you fluid intake and diet to accommodate the routine, you should be fine. Reassuringly, I had to get off the "sunbed" a couple of times because the imaging showed that my bowel was not fully empty, and they wouldn't go ahead with the Rt. A delay of 30 minutes was a small price to pay for a safeguarded bowel!

    Hope it all goes well for you

    Bob