Waiting on multidisciplinary team appointment

Hi. I was diagnosed 27th April. Saw surgeon yesterday to confirm removal is my chosen option. Op will be in next 6-8 weeks. Diagnosis given at Warwick hospital and saw surgeon at Walsgrave Coventry hospital. I would chase them up. 

Thanks for reply chased em up mdt reviewed case today hopefully I’ll hear soon ta 

Hi jellyfish72 I had robotic at Uclh hospital about 8 weeks ago the process was very quick once I was referred to thiem all done and dusted really quick 

Hi Bone,

How have you been recovery wise since op?

Was uncomfortable for the first week or so post op just having problems at moment with bladder control get a bit of leaking spoke to consultant and he has said it could take 6months too a year for the bladder too return too normal 

So do you have to wear pads or tena pants? How long before you felt well enough to return to work (if applicable)? Is ED a problem or has that returned to normal. 

Hi,
I had a phone consultation on 4th February where it was confirmed that I had prostate cancer. I made phone call to the Urology coordinator on 9th February telling her that I decided to have radical prostatectomy. She said it would be about six week wait for surgery. Had a meeting with consultant on 23rd February to discuss surgery and was told it would be around 8 weeks wait for surgery. Emailed the Urology coordinator on 17th March, as it had been 5 weeks and not heard anything. She said she spoke to the booking office and it looks like it will be April and that I should hear something in the next couple of weeks. Phoned booking office 31st March as not heard anything and was told would be end of April. Finally had my prostatectomy on 2nd May.

As you can see that was 3 months wait. Hopefully yours will not be that long as I know the waiting makes you anxious.

Wow thanks for info hope your recovery goes well

Not had op yet but ed is a big worry have read prostate, UK post op care pack (free) ring and read it’s very good thay also arranged for a chap that’s been through it to talk to me about it …just got divorced as well and have a new girlfriend with a high sex drive after 21 years of marriage of very little ..so I’ve been looking into it…looks like it depends if the cancer is spread or is near your two nerve bundles that help get errections can be saved or not..even if saved called nerve sparing surgery it won’t be the same ..as when prostate removed your Willy sinks in as no base sort of thing .so can get short by a bit when flaccid.in the pack thay recommend as soon as your wee bag is removed you start using a Willy pump to keep blood into it and get given Viagra to boost the flow a bit like physio this will give you a good head start to keep it healthy. Then it’s trial and error there are creams injections and even implants too but all very sobering but check out men’s prostate UK. Hope this helps

Hi radiation yes I have to wear Tena pads and still off work they recommend 6-8 weeks for recovery as for ED that is a problem have not had an erection since before op as was on hormone tablets currently waiting on penis pump and tablets to help with this