Incurable prostate cancer that has spread to the bones.

Hi Jan

Looking at what you’ve said there trying all sorts of different treatments. Which is good, they have his health as a top priority. Your husband and me are of a simuler age, although I’ve had mine a few years longer, being frightened about what’s going on is perfectly natural, having said that there seems to be a few plan B’s which I always ask what’s the next step.

Being tired and fatigued is part and parcel as regards the treatment he’s having. It’s just getting used to them.

Stay safe

Joe

Thanks Joe but he’s not tired with the aberaterone he’s never felt better, but it’s not bringing his PSA down, so what next, he’s only been diagnosed 2 yrs ago and we seem to be running out of options, I don’t want him to have to go through chemo again. Xx

Hi 

sorry to hear about your husband. Quite surprising to hear abiraterone not responding because it’s one of the newer drugs and the psa is going up . I am a pca patient with advanced pca now on chemo with radiotherapy planned .
Regarding your husband I would definitely push for a PSMA PET scan with your consultant. It’s highly sensitive and can actually detect where the reccurence is and the treatment can be targetted there . In case a reccurence in bones then the radiotherapy can be targeted there . 
there are a lot of new treatments in the horizon n some already started like immunotherapy like olaparib etc that’s extremely effective. . My advise would be push for a PSMA PET scan . Best wishes 

Hi

I was diagnosed five and a half years ago, I’ve been through the hormone ( still on prostap ) chemotherapy and radiotherapy, now I’m on enzalutamide been on it for just over a year, if need be I have chemotherapy to fall back on, then there’s always the trials.so there’s plenty out there to help.

Chemotherapy is better than the other option, so if it came down to it I would do it again, although I think they don’t give the full dose.

Stay safe

Joe

Hi Jan

I have had a very similar journey to that of your husband Dave.

Chemotherapy (Docetaxel) was successful for a time but my PSA started rising again after about 2 years at which time I was prescribed Abiraterone.

It is a very expensive drug and consultants seem reluctant to extend ones treatment if it is not effective in reducing PSA readings.

I was on it for about a year but the aggressive nature of my cancer reduced its efficacy. I was then offered more chemotherapy (Cabazitaxil) which I believe is not dissimilar to Docetaxel, but possibly milder. I found chemo difficult to endure and have decided not to repeat the experience.

I continue with 3 monthly hormone injections and 3 monthly doses of Zometa, a bone strengthener which is administered by means of IV. My PSA remains high but stable and that is all I can wish for at the present time. Ask your consultant about the possibility of Dave going on a drug trial. There is a lot of research going on at the moment with Cancer Research UK and Pharmaceutical companies working tirelessly to provide new options for those of us with PCa.

Best wishes,

Andy.

Hi everyone, there was a gentleman on here last night replying back to me about Dave, he’s gone through the same treatments as my husband. I have been trying to find him this morning. Being new on here I couldn’t find how to reply. I may have deleted him by mistake or flagged to moderator. There was no name he just went by initials. He was a doctor and used to work in urology, can anyone help. I need to ask him some questions. And thanks to everyone who has replied you have all been helpful and very positive. Xxx

Hi Andy, thank you so much for sharing your journey. May I ask what level your PSA is at present.

Jan xx

Hi Jan, it was Joeven, if you scroll up from this message you should see his reply there

Thanks Dingbato it was MCJC and joe x

Hi does anyone on here no how long it takes for aberaterone to start working. Daves been on it 3 months and nothing to date. Thanks Jan x