Newbie

Hello,my husband just diagnosed with T3prostate with metasises.youve joined a great group here.trying to get involved and perhaps meet local group when they can open again.Has to help chatting with others dealing with this.good luck with your treatment.

Welcome!

If there's anything specific we can help with, ask away.

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Thanks for your reply , it's just nice to know your not alone sometimes. I find a lot of people around me , just dont know what to say , or even avoid the subject. It's good to talk with people going through the same issues. Hope you and your husband are doing well.

Thanks , I still have the urge to throttle those people , especially the " your a big lad , you will beat this" brigade. Had robotic prostectomy in Jan , psa of 3.7 after the op , just come of bicalutamide and started on 6 monthly Triptorelin injections. Radiotherapy isn't an option for me. Still adjusting to the shock of it all to be honest. Last PSA was down to 0.17 , that was due to the Bicalutamide,  have psa test in a couple of weeks to see how the injections are working. Just one of life's many curve balls I guess. 

Same as you i had no symptoms at all and it comes as a bit of a shock. I came to the conclusion that for those of us who were asymptomatic it can seem worse as you just suffer (and some times quite horrendously ) from the treatment rather than the disease. One of the worst for me with little warning was my testicles shrunk by 50% and that really shook me for a time. Look at the changes to your body as this may help with acceptance I didn't and regret it. I keep a hand held fan handy for help with hot flushes although mine only last a very short time. I also spoke to a councilor which I found surprisingly helpful. 

Bast of luck with your treatment   Reg

Thanks Reg , at the time of diagnosis,  I just wanted it out , I gave little thought to the problems I would come across later . At 52 , I'm finding some of side effects quite depressing,  however I had no choice , I had to have prostate removed.  I am starting to accept it's just something I have to live with now and thankfully I have a fantastic , understanding partner ,who is with me every step of the way. 

Hello Dave

'I am starting to accept it's just something I have to live with now and thankfully I have a fantastic , understanding partner ,who is with me every step of the way'. 

This is where I am. Unlucky but lucky.

Hi Dave

If by chance there’s a maggies centre near you it’s a great place to chat about anything. Was no chemo offered or is it a wait and see treatment. I’am a stage four and I just get used to all the appointments checking bloods, scans, injections, tablets, etc. If it keeps me alive then I’am fine all so is my wife who’s my carer. 
stay safe

Joe

Hi Dennis

Without our partners, we would be lost, mine apart from other things, puts all my medication out and when to take, makes sure I don’t do anything daft, as I hate not being as active as I used to be. But I’d rather be alive with her than not.

stay safe

Joe

• Hi Joe , I have visited Maggie's a couple of times now , it's right next door to the oncology dept at Clatterbridge hospital who's care I an under. Great place and very helpful , my partner also visits and she finds a great help to try and understand what I'm going through. It's easy to forget how much this illness effects those around us.