3 1/2 years on after stage 4 diagnosis metastatic prostate cancer. I still feel very ill, no energy, thoroughly fatigued, and feeling sick most of the time, lack of appetite and weak. I tried to do some gardening on Tuesday but had to sit down every few minutes as no strength in my arms and legs and out of breath.
I was diagnosed in September 2017. I was put on Hormone therapy (Zoladex] every three months. This took my PSA levels down from 17.8 to 0.1 but also my testosterone levels down to almost zero. My Gleason score was 4+4 in 95% and the cancer had spread to my lymph nodes and seminal vestibule and metastasized in my left pelvic bone and ribs. I had investigations into symptoms in my bowels and started chemotherapy ( docetaxel ) in February 2018 six cycles. I had several hospitalizations, for infection of the blood and high temperature, and heart arrhythmia. However, I got over this neutropenia and started 19 sessions of radiotherapy in November 2018. After my treatment ended I started to start feeling ill again and felt I was just dragging myself around. I just wanted to sleep all the time. in November 2019 I fell in my hall and broke my hip in such a way it needed replacing. Whilst in hospital my oncologist visited me. it was decided I would come off the Zoladex. My testosterone levels didn't climb as expected and remained at only 1.1. This explained in part why I was always so tired, I was sleeping 14 hours a day. In September 2020 I had a heart ablation at St. Georges Tooting. This was unsuccessful as I had several instances of Atrial fibrillation and flutter since. My cardiologist has put me on a new heart rate drug and has organized a 24 hr. heart halter. My urologist has arranged a flexible camera up my waterworks to address my returning cancer symptoms. I am on over 30 medications including blood pressure, heavy-duty pain killers, blood thinners, flow tablets, bone strengtheners because of osteoporosis, laxatives, beta-blockers, nerve pain killers, and stomach calmers, and irritable bowel calmers. I don't feel too bad when sitting but as soon as I start standing or walking around or bending or exerting myself I feel really ill and have chest pain and breathing problems.
Any Ideas?!
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