Prostap

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Greetings everyone. 

I have been on Prostap since 2020 on active surveillance.     My prostap is due this afternoon at the GP surgery, but for four days, I have had a really bad back and don't think I can get there.    If they will not send a district nurse out, can Mcmillan nurses make a home visit for it. or would it be safe to postpone it for a week or so?

My psa tested a week ago was 1.5. 

At the last  one, I thought I may lose my driving licence for declining vision, and they told me that a district nurse would only come out if I was housebound, and I said that I was if I couldn't drive, but should use a taxi.   But in my present state, I  doubt if I could walk from the parking ground to the surgery!

Anyway, my cataracts in both eyes have been fixed, and I have passed the DVLA eyesight test and my licence has been renewed.

I  have no idea how long it will take my back to get better.   So far this year, taxis for hospital appointments have cost me over £640, but in the present case, it is not a question of cost, but my impaired mobility.

I am 82, and even when back is OK my walking range is limited!

Regards

  • Good Morning  

    I am so sorry to read of your back issues, but there is good news regarding your eyesight and your driving licence.

    The issue of your HT injection and accessing your GP's for this is a matter for you and the GP practice to sort out. If you can't get to the GP's surgery they should be able to arrange with the district nurses to deal with your injection at home. 3/4 days late won't matter.

    You need to contact the GP practice today and let them know of your situation.

    Best wishes - Brian.

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  • Thanks very much.    I phoned the surgery and told them of the situation, and they just said they don't do home visits, I asked what I  should do - just die? and just got the same, sorry, can't do a home visit, so I guess that is that!    I have a phone consultation with the cancer department at the hospital on the 4th, so I will just tell them, and leave it at that!

  • Hi, as has been mentioned, the GP is the best point of reference here, both regarding any medical implications in delaying the Prostap if the mobility issue persists and the practicalities of getting the injection done in the circumstances. As someone who periodically has a debilitating back problem and spent two years on Prostap ending last February, I can sympathise on both counts! In the case of my back problem the initial acute flare up lasts a few days until the inflammation subsides and gives way to a general soreness for a few weeks. At some point in all this I get an appointment with my Chiropractor (highly recommended!) and things settle down again. I don’t know if loading up on, for example, a combination of ibuprofen and paracetamol (which can be safely combined, provided the individual doseage of each is correct), would get you mobile enough to go to the GP in the next few weeks?

    Regarding Prostap, I had a query about precisely when to stop it after the two years, injection timing etc., and from the doctor’s answer it was clear that it wasn’t that critical. Again, the GP will confirm this.

    All the best with this and your ongoing journey, Mike

  • I am just going to make a desperate effort to get to the surgery  and then phone them up to ask if they will collect me from their carpark with a wheelchair, if they will not, I will just go home and forget it, until I have my normal phone appointment with the hospital in a few days.     It appears that home visits were discontinued amongst all the other cuts, so I will just have to accept it.    My back may get better  it may not!

  • I made a great effort, and got to the surgery parking ground, and got the last available parking place. I phoned them and asked if they could bring a wheelchair out, which they did, I got the prostap and was taken back to the car. I have no trouble driving, as no pain when stationary- sitting or lying down. But if I become permanently disabled, and unable to drive, I suppose it will be bye bye prostap!

  • Hello  

    I am pleased to read that you have now received your Prostrap Injection.

    But if I become permanently disabled, and unable to drive, I suppose it will be bye bye prostap!

    Let's hope you never get to this stage BUT if you did, things would change, you should be able to arrange transport to the GP Surgery and UK law states "as you have a disability your GP Practice must make reasonable adjustments to enable you to access their services".

    Stay positive - you are good for another 3 months.

    Best wishes - Brian.

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    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm

    Strength, Courage, Faith, Hope, Defiance, VICTORY.

    I am a Macmillan volunteer.

  • Excellent news!!