It’s one year next month from my diagnosis. I have been discharged from Oncology and passed to my GP Services. I would be interested to know if this is the Usual procedure mid treatment. It’s now left to me and my GP Services to monitor my on going 3 month PSA tests. I know I will but not sure my GP Services will!
My background is:
Initial PSA 135 at July 25. Gleason 7 (3+4). Grade 2 T3a NoMo.
Treatment plan 2 years of Decapeptyl + Radiotherapy after 6 months of same .
November 2025 PSA down to 15. Radiotherapy End of December to nearly end of January 2026.
First PSA after Radiotherapy down to 1.7. Post Radiotherapy Oncology meeting early May. Transfer not discussed and I got the impression Oncology were expecting a lower count than 1.7 I didn’t get an answer when I asked.
May 2026 transferred to GP I only found out by reading the letter to my GP which was sent only the other day (23 June) backdated to May. Sorry to be rambling on but like one of the recent post I have read, My feeling is of being left slightly abandoned mid treatment. I thought Oncology would have seen me through a couple of the 3 month PSA tests to spot a trend rather than my first post Radiotherapy. I still have 13 months of Hormone therapy to go also.
Just interested if this is the treatment “Norm”.
Thank you.
Hello Racketballplayer
There are about 220 NHS Trusts in the UK. Take off the ambulance and mental health trusts that leaves about 190 - and they all go about their business in their own way.
I agree with you and thought you would be under oncology until possibly a year after treatment has been completed. I am under The Christie in Manchester and the first time my treatment finished (yes not a good sign!!) I was under their care for the next 3 years.
I find GP's are not very well versed in dealing with cancer - my GP is a large group practice and I have to lead at most meetings - they aren't aware HT can lead to increased blood results in type 2 diabetes or weight gain!!
If that's the case I would take management of your journey in hand yourself - make sure you have full access to your test results on the NHS App. Make sure you book your own HT injections and ask for full blood tests not just PSA at least every 6 months.
I hope the above helps.
Best wishes moving forward - Brian.
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