I presented with T3b N1 M0 PSA 252 in January 2022.
I had full pelvic radiation, chemotherapy and ADT for three years.
A year later my PSA is now 2.9, so I had a PSMA scan which to my surprise didn’t show any metastatic disease but cancer in the prostate.
I’ve been offered an operation to remove the prostate, which is something they wouldn’t do originally.
I understand only a handful of surgeons will carry this out because of the difficulty involved caused by scar tissue.
People tell me that the side effects are brutal; any thoughts?
Hello Roger That
I am sorry to read your post - I honestly thought we had seen the last of you as everything looked to be going fine.
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I am aware that surgery is possible after radiotherapy but am unaware of any group members who have been down that route (I have been wrong before).
I understand salvage radiotherapy to be complex as the original radiotherapy causes the tissue around the prostate to scar and stiffen. The side effects are ED and a high possibility of bladder and bowel issues.
Now I can't go against medical advice so this is a question - why can't you go back on HT - possibly the 2nd generation HT such as Abiraterone or Darolutamide etc.
Only my ramblings but I hope they help.
Do let us know how you get on.
Best wishes - Brian.
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