Spuduknow update

Spuduknow 23 days ago

8 replies
128 subscribers
498 views

Hi everyone

So I said that I would let you all know how my biopsy went,

My History

T3B N1 M0

Age now 67

Cancer spread to lymph nodes in 2020

High risk and aggresive and Gleason 9

Sarted right away at the time on 2 years hormone treatment

2021 Chemotherapy and Radiotherapy

PSA 0.01 after treatment until February 2025

Then increaeed throughout the year, in February 2026 PSA was 1.7

I had a biopsy after a psma pet/ct scan which found the cancer had gone walk about

To the nodes/areas as follows-

Abdomin

Ribs/bones

Left side of neck

Spine - multiple areas

I adimted to hospital last Sunday and had another MRI scan as I could not get up or walk.

I was told that the cancer had also spread to multiple areas of my spine but no spinal compression

The reason for me not walking was Multie disc degenerative disease I also have radiotherapy damage to L5-S1

I came home after 5 days in hospital with a catheter to help me and new pain relief (progabaline)

along with oromorhe which has to be stepped up from every 4 to every 2 hours if needed.

Also came home with a zimmer frame on wheels and a stick

My left leg is not as it should be along with left neck and shoulder pain

Pain 24/7 Stars in buttocks

middle lower background the groin down my thigh and 10/10 pain at the front from knee to my foot

(This is the multi degenerative disease mentioned above)

I'm home and taking things easy, without feeling sorry for myself

I saw many Doctors and see th Oncologist on Tues for the bigger picture "the prognosis " and if I want the treatment offered before this happed (apalutamide) but the treatment offer may change

So thats were I'm up to for now

Love to all my friends on hear

Take care

Spud

"you don't know how Strong you are

until being Strong is your only choice"

Bob Marley

)

Millibob 23 days ago

Hello Spud

Not the news I wanted to read and I am bloody sure you didn’t want either!!

All I can say is best wishes for Tuesday and I hope you get a plan and some positive news. Christie’s are the best and I am sure they will do what’s best for you.

If I can do anything for you drop me a line - I am almost round the corner- if you need to chew the fat - I am your man.

Bob was right!

”until being strong is your only choice”

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Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm

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Spuduknow 23 days ago in reply to Millibob

Thank you Brian

It's nice to know people like yourself are there to talk or listen to

I have to be the same old spud and keep positive but not over do it when I get energy

I'm sure we'll speak again this next week

Thanks Brian

copyman 22 days ago

Sorry to hear you are going through this and have to deal with pain all the time. It sounds like you are handling it better than most people and are a strong person as you quote at bottom of your post. Hoping & praying you get relief soon and wishing you the best.

Spuduknow 22 days ago in reply to copyman

copyman

Thank you for your kind words, I was raised being told "there's always someone worse of than you"

Wise words by a very lovely mother.

As you can see I'm in the wide awake club again, been awake since 3.00am and stuck it out until now 04.55 but just taken pain relief

We know that the whole left leg/hip/buttocks pain is due to the multileval degenerative disc disease as shown on both psma pet/ct scan and the mri scan whilst in hospital last week

I had already seen the oncologist at the end of March confirming new speads to the abdomin, bones/ribs and left of neck. Howver the bomb shell was that I have multiple cancers on my spine.

We already have an appointment booked to decide if I take on new treatment in the form of apalutamide so this falls nicely into place said the hospital for the oncologist to hive me a prognosis.

This i can then digest,process and get on with beating this thing inside me.

Take care copyman

Thanks again

Spud

Rivelin754583 22 days ago in reply to Spuduknow

Hi Spud.

So sorry that you are in the wars but congratulations to you for battling along.

There is so much for you to absorb.Sciatic type pain from my hips to my toes alone brought on depression in me for a fair while so that is just a slight taste of what you are going through.

My very best wishes and admiration to you for your indominatable spirit.

Alpine Wanderer 21 days ago in reply to Spuduknow

Spuduknow said:
As you can see I'm in the wide awake club again, been awake since 3.00am

I know I’ve posted this before, but when I read about you being awake in the blackness of the night, I thought of “Invictus”. I admire your stoicism immensely.

Out of the night that covers me,

Black as the pit from pole to pole,

I thank whatever gods may be

For my unconquerable soul.

In the fell clutch of circumstance

I have not winced nor cried aloud.

Under the bludgeonings of chance

My head is bloody, but unbowed.

Beyond this place of wrath and tears

Looms but the Horror of the shade,

And yet the menace of the years

Finds and shall find me unafraid.

It matters not how strait the gate,

How charged with punishments the scroll,

I am the master of my fate,

I am the captain of my soul.

all the best Spuduknow - there will be many more rooting for you, that are observers to our chats. AW

Spuduknow 21 days ago in reply to Rivelin754583

Rivelin754583

Thanksgiving your lovely and encouraging words

Take care

Spud

Spuduknow 21 days ago in reply to Alpine Wanderer

Alpine Wanderer

Wow how beautiful is that, the last line in particular with me, it is so me

"I am the captain of my soul"

Take care be safe

Spud

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