Question advice please

TRJB 2 hours ago

2 replies
122 subscribers
69 views

Hello all

I posted a few weeks ago but can't now find it. I was advised to create a profile, which I have. So all my details are there.

Biopsy result early next week and it's a dead cert that it will be positive. Please can I ask your advice on questions to ask, what did you wish you asked and didn't etc. looks like the recommendation will be for radiotherapy but won't know for sure until next week.

I've spent the last few weeks reading through all the very helpful posts here and gained lots of information and have a few questions written down but any others

would be great

Thanks

johnam 1 hour ago

Hey TRJB if you go to the top of the post and the little spy glass type in TRJB and they will come up as you have 3 .

i made a list with my husband took it to our first oncology meeting and was told put it away I’ll answer everything . Well don’t as I challenged him on out third visit and he was quite shocked I spoke up . Things changed from then and he is now very approachable.

our list was very comprehensive and maybe that was the problem . The crux of it is ( I’ve taken out what was relevant to my husbands diagnosis )

• What is my Gleason score?

• What is my Cambridge Prognostic Group

• How far has my cancer spread?

• What treatments are suitable for me?

• What do they involve?

• What are the advantages and disadvantages of each treatment,

• including their possible side effects

• How effective is my treatment likely to be

• Can I see the results of treatments you’ve carried out

• Can I get copies of all my test results, emails and letters about my treatment?

• Is the aim to keep my prostate cancer under control, or to get rid of it completely?

• Are all of the treatments available at my local hospital? If not, how could I have them?

• Can I join any clinical trials?

• How quickly do I need to make a decision?

• After treatment, how often will I have check-ups and what will this involve?

• If I have any questions or get any new symptoms, who should I contact?

• At the end of the discussion I reiterate what I understand is going to happen next, and get their confirmation that I understood.

• I ask for the timescales.

• I ask for who to contact if they slip outside that.

• I ask for email addresses to contact - I am a great believer in the written word so there’s no confusion on who said what.

is my son and grandson more at risk and what. Should they get tested .

hope this helps

liz & OH x

TRJB 59 minutes ago in reply to johnam

Thankyou, I have some further ideas now. Just looked up what Cambridge Prognostic Group as haven't come across that before. Will add the questions to my list.

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