Dad

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Hello I popped up a few weeks ago with a general chat about dad and his prostate cancer 

Urology rang me today they have his latest results from his ct scan but she said usually they like to give them in person , we no it’s spread to his hip and his spine that was just via his xray , but he went and had his ct with contrast 2 weeks ago 

I’ve got a massive problem though my dads been awful and won’t answer his phone , they won’t give me the results even though I can speak on his behalf , he’s being so hard work and I honestly have begged him to answer if they ring but he won’t , it’s becoming such hard work and making me feel depressed, they said to me he needs to go for a mri and a discussion with his consultant about what is next and they want to look at his spine as he is in pain and they need to check for spinal compression 

I’m just in limbo because he’s being so private and nasty to me and I’m doing all I can 

he had his blood psa test last week they have come back and are under review his last score was 135 I can’t believe how much he has declined honestly it’s so hard to see from the man he was , he’s lost a lot of weight but apparently doesn’t need ensure drinks ( work that out ) I’ve had a go out to him and they said he is clinically fit just needs to attend these next appointments 

someone please tell me how I’m going to get my frail dad to these appointments 4 weeks ago he went for his ct scan with patient transport but he’s declined since then 

I’ve actually just been in his home and his phone is ringing and he’s saying it’s eon but I’ve got a feeling it’s the hospital waiting to make this appointment! I’ve told the lovely lady Jo that I’m having such a nightmare with it all I want him to get better but how can he when he’s just sat in bed getting weaker and weaker 

  • Things are bad but out of your hands at the moment.

    Obviously without a power of attorney signed and registered you are stuck with pushing him verbally to move his backside to help himself.

    Clearly thee is no confirmed diagnosis yet and that is what you are trying you very best to arrange.

    The thing about his position is that he and you are guessing what stage and freedom score he is which means on a positive view all could be ok and if you’re being negative all hope is lost. But the thing is that until you get a diagnosis your guess is as good as mine.

    Despondency and being prickly is enough of a hurdle but with privacy and stubbornness you can only do so much.

    Can you talk to his and your GP? Your GP might be able to help you on two ways. One, to help you with a little bit of self sufficiency with counselling or two, medication. And your dads GP might be able to go and make a house visit and gee him up with his self belief and hope and also help him with gauging the situation and help needed for the urology/oncology side of things.

    Look after yourself first.

    How old is he? Has he had any treatments lately for anything? Is he on any urology medicine?

    You need a plan with the help of the clinical experts asap to allow everyone to understand and help.

    Good luck