Post op state of mind

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Hi all.  I was diagnosed in march, had op Aug 20 and since been doing well.    I am dry from day one post TWOC    I have an app oct 30 to discuss the results from   the op.   I was Gleason 3+4    Less 10% pattern 4   psa 22     The odd thing is, I would have snapped their hand off in march with this outcome, although I ve not had the histology yet but am pretty hopeful all will be fine.  It’s just that I don’t feel as happy I thought I would have felt if this had been a scenario given to me in march upon initial diagnosis     Has anyone’s else had these thoughts  or similar feelings.  I’ve stressed for the last 7 months about , mri scans , biopsy, bone scan ( mega stressful ) , the op, the recovery and post symptoms.   Cheers all.   Simon 

  • Hi Simon

    I think fairly normal, I didn't feel that great when my RT finished, not sure why.

    I had 6 counselling sessions afterwards as well but still didn't feel that good.

    However, it does get better but u need to give yourself time, it does take time, 

    Also you're waiting for the first PSA result and worrying about that as well.

    At least if first PSA is ok u can relax a bit.

    Good luck, give it about 6 months, hopefully next spring you'll feel better.

    All the best 

    Steve 

  • Appreciate your reply.   It’s just an odd feeling.  I’ve said previously. Prostate cancer  is mentally draining not physically 

  • I agree especially if you have gone through many years of tests and scans and then treatment Thumbsup

  • It’s been 7 months from intial diagnosis to now.   Feel great physically. Obviously the first psa is on my mind but not as much as the other tests.  I’ve done all  I can to give myself the best chance ( surgery )  to get rid of it but if it’s still lingers then I know I’ve options.   Cheers Simon 

  • From a recent posting  on another forum it seems that feeling is not uncommon .

    I am only at the beginning if this - awaiting biopsy results - so far T3 with some possibly limited ? Seminal Vesticle spread.
    I can only say from what I know so far is that at the beginning particularly when I had no firm information apart from a PSA of 15 = 50% chance of cancer at that point - I'm thinking what if I am one of the really unlucky ones which get a T4 with very little warning?
    So the  mind is reacting to the threat level going up to 11 - a possible threat to life itself and self preservation.

    That takes its toll in stress but as information trickles out from investigations - the emphasis changes -
    the immediate threat might recede but it becomes a chronic stress - even after treatment (with curative intent as they might say)
    what if it comes back?
    I'm not even there yet but trying to come to terms with what is going to be a chronic condition that needs monitoring and possible management .
    So it will never fully go away - but I have no idea how well I will cope with all that.

    But even this early, I agree when you say  it can be mentally draining, if not sometimes (with some treatments for me to come)  physically.

  • Hello Simon ( 

    It's a strange one - there's always going to be the "what if's" before a test - and do you ever finish treatment and stop thinking "Cancer"?

    If you have some time for a read there's a cracking paper here:

    After-the-treatment-finishes-then-what.

    I hope this helps.

    Kind Regards - Brian.

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  • Cheers Bri.   I read that.  It’s very good and exactly what is going on in my head    I’d like to think that people who have had this,coped with it and lived with it are betterc people.  I can honestly say I’m more tolerant since this whole thing  occurred        Many thanks    Simon 

  • Hi Simon

    Ive posted about an hour ago regarding my ED and the affect on my marriage.

    I had prostate removed 28th July with follow up appointment on Weds.

    I cope with diagnosis fine and up untill and including op as told early C contained within my prostate.

    All negative feelings and emotions only after having op.

    It is not having an op say on a limb, you physically recover then life back to normal C hits hard emotions.

    Keep in there, I dont know how my journey will end !!!