Hello everyone,
I am new to the site. I hope I haven't over shared.
Our journey started in March 25, my husband is 58 years old, ( very active) he previously requested a PSA test in August 24, but was refused by the GP, all other blood tests were carried out which came back OK, however, my husband still knew something was wrong as he was having problems holding back his flow and erectile dysfunction at times, he then had a face to face appointment with a GP, explained that PC was in the family, (his farther,) the GP then gave him an examination and told him his prostate was very swollen, and that it didn't look good,and arranged a blood test, which came back at a PSA level of 95.
We then went to the hospital, where he was examined again and told by the specialist that in his experience he was 95% sure it was PC, but couldn’t confirm until the other tests were completed, the biopsy was first, he had 12 needles and they all came back positive, he then had MRI, CT and bone scan, the bone scan was clear, but the other tests showed it had come out of the capsule and was in his 2 lymph nodes in his pelvis, results- Gleeson 5 , grade group 8, we were told at this point that it was curable, (as you can imagine this was good news) and we would be going to Weston park, for treatment, they started him on HT tablets, then hormone injections every three months after 4 weeks, then radiotherapy to clear it.
On the 14th Aug, At Western Park, the consultant told us it was not curable as it had spread to the retropertoneal lymph nodes behind his tummy, he didn’t say how many of the lynth nodes, ( I did ask) his treatment plan is HT injections every 3 months alongside another tablet, then radiotherapy in December, he will be on tablets for the rest of his life, prognoses was anything from 2 to 10 years, ( wish we hadn't asked) as you can imagine I am really struggling to get my head around this, I am really worried, although my husband is just getting on with it, and so for none of the treatment is giving him any side effects.
I wont go into it but we have had a terrible time at the hospital. The other thing I have noticed from reading other people’s journeys, is the majority of people on this forum started their treatment as soon as they went to the hospital, where my husband didn’t start his HT ( tablets) until early July despite his diagnoses in April.
I was just wondering if anyone else was in the same situation.
