PSA results

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Hi I've always been given my PSA results over the phone from the hospital urology department, but I've now been told I've got to wait for the appointment which is the 2nd of June which I think is wrong as I would like my results before. I did have the blood test done at the hospital, but now I'm thinking of getting it done next time at my doctor's. I'm on Active surveillance ATM. 

  • Yes , I think GP a lot easier, sometimes I can get my result printed out the following day.

    Steve 

  • Hello  

    Welcome to the group.

    I appreciate it's 2nd June today so it's your meeting so good luck with that.

    They are YOUR results and you are entitled to know them - the hospital are wrong in not telling you them.

    Best wishes - Brian.

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  • I had problems with getting my PSA results, letter said they would only contact me if there was anything to cause concern. In the end I rang my Urology department and asked them to send my results to myself and my GP,  I was asked why, because I would like to know what it was, not knowing was a bit of a worry which surprised them.  

    The Urologist agreed with me and said I would get them.

    I live in Scotland where there are huge changes afoot within the NHS, we really do have a post code lottery up here and  do not have an 'app' on our mobiles to look up our records.

    Medication is now supplied by two big organisations and has to be ordered two weeks in advance, I have to travel over 30 miles round trip to a medical centre where it takes less than five minutes to get my 3 monthly PSA test done because the test is requested from the hospitals urology department. 

    My GP is 5 minutes from my house and says it will not get funding for the PSA test.

  • Hi  

    we also live in Scotland and our GP sent a letter to our Oncoligist stating they will not do the PSA test . The oncologist in return sent them a letter stating different.  There is a national agreement that your local GP surgery will undertake to do the PSA tests in their behalf . So please go back to your consultant and ask them to give you a copy of the national agreement  If you need a copy let me know 

    regards 

    Liz & OH XX

    1. I am on active surveillance in Wales we have patients knows best, I have the blood test then I can view all results and clinical letters biopsy and mri dre reports.. it takes 7 days to update from time of exam or other tests.. hope this can help..I've been on active surveillance for 5 years diagnosed at 45 years old, now 50, if you have any questions about my active surveillance journey please feel free to contact me, From experience I know active surveillance can be a minefield I found through a lot of self research if you don't ask your medical professional they don't tell you much.. Upon first diagnosis I was pointed to surgery I done my own research if I didn't this could be a different conversation... Hope thus helps...
  • I am in tender hooks every time hubby has his blood test. As it is requested by the hospital but done by the GP it dosent show on the app. We ring the oncology nurse the following day for the results and then she re issues a further prescription for daralutamide. Obviously people want to know asap. 

  • my GP puts mine on my NHS  APP the next day , the hospitals use a differant IT system and theres little communication between hospital s and the GP practice ( as the nurse told me) so best to be pushy and insist IMO

  • my last hormone inj was booked at the doctors , when i went the nurse didnt receive the referment off the hospital and worse still didnt have the HI .so i had to rush to the hospital after nurse rang then to get a 1 month HI ( the hospitals dont stock the 3 month ones) and then rebooked the 3 month HI after a month  at the doctors practice !!crazy or what .your life in their hands lol

  • I'm also in Scotland and lived on an island when I was having my HT (2018-2021). I always requested the prescription for the next injection at the time I was receiving one. I was on Prostap and it can be stored at room temperature so I just kept it at home until injection time arrived.

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  • Hi Bassmaster, I am also on AS and have been for 3.5 years, I would be interested in your PSA history and if you have had multiple biopsies and how the results might have changed