Think I may have put this in the wrong group first attempt…
last year my routine PSA came back as 6.1, the retest showed 5.8 and I naively hoped the drop was a positive sign. All DRE results were “that’s feels absolutely fine”, but I was sent for an MRI due to the PSA (sorry about all the acronyms). An anomaly was found and so biopsy followed. That confirmed a small but aggressive (Gleason 5+4) tumour. Subsequent CT and bone scans showed no obvious spread, so a positive in the negative. Unfortunately my paperwork was then misfiled, so I had to chase everything calling every number I could and it took a month and a half to get a consultation about treatment.
Just a note to everyone: always check your NHS app - I found all my results there before I got any calls or letters which gave me the indication to chase after the bone scan and find out why nothing was progressing as everything had been recoded!
Have decided on surgery and should have an appointment in the next 6-8 weeks. So things are progressing. I am weirdly ambivalent about surgery. It feels like the cleanest and most direct and “tidy” solution. Radiation feels too drawn out and exhausting in my mind. So I’m positive and happy to have a clear path ahead, but am also terrified of potential side effects.
I don’t think anyone can really help with that and it is my internal fight with my own negative imagination, but reading here has given me support already seeing other stories.
I’m not sure if this fits here, but due to contract issues my company has been struggling financially for over a year and that put massive strain on my marriage (a lot of history there). This has now put the cherry on the cake, and apart from some logistical support (taking notes at appointments so I don’t forget things and stuff like that) she has withdrawn every last scrap of emotional support. With no family close, I’m facing this pretty much alone. Has anyone out there been in a similar situation and found a good way to cope with it?
Sorry to end on such a bum note. Thanks for any feedback
Hello Fzh2p0
Another welcome from me - we "met" on New to the Community earlier. So you have chosen Surgery - I wish you well on this pathway - we have plenty of Community members on that pathway. Any help, questions or indeed support you need on that pathway - just give us a shout - we have plenty of folk who are going down that route / have been there to support you.
Here's a link to JohnyBoy who has just been where you are going and it's cracking report of the journey.
I am so sorry to read of your personal circumstances going into surgery - so here's a few links you may find of use:-
* "Maggie's" as johnam put in her post earlier this is a cancer support charity with many centres where you can just drop in for a brew and support - details = here Maggie's
* If some free counselling would help here's another link - Free BUPA Counselling
* There's plenty of support available from our Support Line on 0808 808 00 00 (8am to 8pm 7 days a week) - they are a great set of folk who don't judge!!
I am available if you want to either message me (my message box is always open) or just put up a post. We as a group are here for you - we've been there, got the t- shirt and know the score.
Best wishes - Brian
Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm
Strength, Courage, Faith, Hope, Defiance, VICTORY.
I am a Macmillan volunteer.
