PSA raised and oncology review

Hi Janet (Worriedwife ), you are at it again! Far too early to be worried but you won’t listen to me I know.  Seriously, if they are waiting for 3 months then I don’t think they are that concerned. It isn’t easy to stop thinking about PCa but try and do normal things.  I like your OH’s attitude - don’t worry about things you can’t influence.  Exercise is the best way to help bone strength and if he needs to go back on HT at any point, I would mention about the additional Calcium.  Best wishes, David

Hello Janet (Worriedwife) 

My thoughts are with you here - I have been with you on this journey and know how you have been worried all the way through, and just when you thought you were there - boom.  It's just like being back to square one. 

I have already shared my thoughts on my personal journey - and I now have to wait until February for my next PSA test. BUT I do have confidence in my team and it looks like your team are on your husbands case.

I know it's easy for me to say - (you know I don't worry) - grab life by it's balls - enjoy your cruise, enjoy Christmas with your children and grandchildren, celebrate another New Year and IF his next PSA is up - let's fight this battle as a team!!

(I only reminded my team about calcium/Vitamin D tablets once I had been reminded by another Community Member about them! - they forgot the prescription!!)

Best wishes - Brian.

Thanks for your very kind words, Brian. I have worried that there will be recurrence since almost day 1 and especially since he stopped the HT at 18 months but I know that this is something that many people have to face and we are not at that point  - yet. My husband seems relieved that they are not just overlooking this slight bounce but are ready to jump on it if there is a problem. I am just 'getting him back' after the misery he experienced with HT so it will be a bitter pill to swallow if he has to go back on it.  Oh well, que sera, sera!

You are quite right, David! Wise words - trying to take them on board. I kknow there are plenty of brave soulds here fighting a much tougher battle than us.

Janet, we are all with you.  As Brian said enjoy your holiday.  I have just booked a cruise for next July round the UK as insurance is becoming more of a problem going abroad.  David

Sounds lovely - a cruise? Which company? I hope the weather is kind to you and you have something to look forward to through the cold, dark winter days. Yup, travel insurance is a minefield - and expensive when things start going wrong.

Janet, it is a small ship (by comparison to many) with only 700 passengers.  It is with Regent and we have found them good in the past.  Yes, definitely worth having something to look forward to.  It has been grey and miserable all day here. 

Hi Janet , I think we do the worrying for them as my OH will tell anyone I don’t get stressed but on a bloods week no sleep and it’s like lighting listmus paper . So this week was a double whammy bloods then the gold seed implants. He is now on monthly bloods and if it stays low ( currently 0.1) it will go to 3monthly in January .

I believe tgaf when he starts his RT next month it could bounce a bit . On another note he’s been white headed for 20 years but since he started HT he’s getting patches of dark hair coming in any ideas ? 

take care & hugs 

Liz & OH x

Sounds magic going on a cruise . Just sit back & enjoy it David x

johnam said:

. On another note he’s been white headed for 20 years but since he started HT he’s getting patches of dark hair coming in any ideas ? 

Now that's a new one on me!!  When we got married 45 years ago I was a "ginger" but now very white. I did have a few remaining red hairs (not telling you where) but sadly Radiotherapy put paid to them!!

I know we joke on here sometimes but all I can think of is he's getting younger!! .

On a serious note - Lorraine (Mrs Millibob) does all the worrying for me - after 3 years on this journey I am totally relaxed. I do appreciate you partners/wives have much to put up with as we men can be a stubborn lot and I put that down to once we have a diagnosis we no longer feel we are the "hunter/gatherer" and are not in control. Anyway - thanks for the support we all get - even if we don't show it.

Best wishes - Brian