No evidence on treatment

  • 9 replies
  • 114 subscribers
  • 312 views

Hi fellow advanced cancer guys

I am stage 4 gleason nine and had tattoos and scan yesterday 

Radiotherapy started 27th november 

Talking with consultant yesterday he said they would be looking to sweep prostrate and surrounding lymph nodes plus bone met in right pelvic area 

The consultant said that there is no evidence  zapping bone met with prostate gets a man on treatable path back to treatable path ,anyone have any different view to this 

  • Hi

    What is you full staging? 

    Let us know as I'm sure there will be someone here who can help re bone mets. 

    My understanding is that bone mets need chemo rather than HT/RT but I'm no expert.

    Regards

    Stuart

    Trying to get fit again!
  • Hi Mal

    My understanding is that if in the bones treatable but not curable although I could be wrong there.

    But still very treatable and your consultant sounds fairly positive talking about a sweep of prostate and surrounding areas.

    There are plenty of treatments to keep u going for years and don't forget there are always new ones together with clinical  trials so worth doing some research.

    Hopefully others will give more views on the bone mets.

    Best wishes 

    Steve 

  • Hi Mal CG

    Radiotherapy is excellent at attacking both cancer and bone mets, depending on where they target the radiotherapy.

    Normally chemo is part of the treatment, which attacks the cancer and prostate, hormone injections also are usually combined with this treatment.

    Not certain what your PSA is, but Gleason 9 is treatable, I’ve been battling this for eight and half years, so you have time on your side, you will go through many different side effects, but keep positive and if you are on chemo, make sure you check your temperature twice a day, I know how important this is, as I’ve had sepsis twice from two chemo treatments albeit eight years apart.

    Stay Safe

    Joe

  •   , I am not medically trained but I think that RT will kill all the cancer cells it meets, but the problem with PCa is that once the cancer has left the sack and surrounding area, microscopic cells are possibly sent off around the body.  So killing the source may or may not get all the little blighters.  Once HT stops these have a habit of starting up again.  If you keep on HT then gradually they become resistant to the treatment and again recurrence may happen.  David

  • Stage 4 with gleason 4+5 and one visible bone met pelvic area 

  • My initial PSA in February was 31 then it dropped   after zoladex 10.8 3monthly implant to 0.4 

    Last week my PSA was 0.6

  • Hi !

    Not really knowing what the sweeping really means but zapping a bone met can be done with a few different radiation modalities.

    If your affected lymph nodes are regional (e.g. nearby prostate in pelvic area) they are probably zapped with the conventional radiation; with WPRT (whole pelvic radiation therapy) and then extra dosage to the affected lymph nodes.

    I think normally when your’e talking metastatic disease they never really talk ’curative intent’. But if you are what i think from reading your profile; you are oligometastatic, very few mets and probably also not that high volume of cancer and then you’re in a whole different world of treatment possibilities compared to others with more mets and / or high volume cancer

    Hoping for the best Slight smile

    Best wishes - Ulf

  • Hi !

    I would say that what is Not showing up on different scans could be treated with chemo or if you’re big volume cancer / lots of mets I would agree totally. But one known bone met you definetly can treat more efficiant with for example SBRT and probably zap it away for good

    Besy wishes - Ulf