Greetings everyone. I was diagnosed in 2020, and put on Prostap. The aggressive adencarcinoma was confirmed after PSA 257and biopsy, although the only symptoms were a bit of blood in the urine occasionally. and scans indicate it has not spread. No blood since going on Prostap, and no prostate symptoms either as far as I can tell, and PSA down to 1.5 But I developed quite severe abdominal pains last may, that largely prevented me going out, but eased a bit if I lay down or sat still. Scans and x rays organised by the GP showed normal for pancreas, intestines, spleen, liver, gall bladder, kidneys etc, but I see that Prostap does have a reputation of weakening muscles. I also have Bronchiectasis that causes a lot of coughing, that does not do the muscles much good either - Has anyone else come across this? Initially, I did mention it to the cancer consultant who just told me to see the GP as she didn't think it was prostate related! The only advice I have had was to take paracetamol, but no more than 8 a day. I ended up taking 56 a week, and they kept the pain away, but I still didn't like the idea of taking so many.
This had gone on for so long that I have now started looking for a cure myself. Two months ago, I decided to try a gluten-free diet, and less than 24 hours after starting, the abdominal pains disappeared, so no more paracetamol at all required since then. But the muscles inside my body feel very strained and sore if I walk or move about, so I still cannot go very far if it involves walking. I am OK in the supermarket where I have the support of the trolley.
I am now thinking of trying D-Ribose that has a good record of strengthening muscles. I cannot find anyone else with these symptoms. I sleep OK, because pain goes completely when in bed. I am losing a bit of weight, but feel that may be due to stopping eating wheat products. I am aged 79, male and currently weigh 57.9 kilos.
If I could get rid of the pain when walking or moving about, I would feel great. It is not severe, but is very distracting, and very uncomfortable.
Any ideas anyone please?
Brilliant! Well done you! I wasn't thinking of you being depressed but more that it made me depressed about the situation that some people find themselves in when dealing with old age and feeling vulnerable and at risk because they use walking aids or have a rail on their steps outside their house . You are coping admirably. Unfortunately my Mum and Dad didn't cope at all and after a bout of shingles on her mouth area at 63 My Mum wouldn't go out because she was conscious of the way her mouth was slightly out of shape. Honestly no-one would have noticed - especially if there was a Bradd Pitt look alike around or (can I say this these days) a nice looking waitress or barmaid but there we are. Unfortunately my Mum took my Dad "down" with her and despite being quite fit and playing bowls really well she eventually had him sitting in the chair at home with her all day and everyday. They both lived until they were 89 but the quality of life - even with carers and family help was practically zero.
Thanks for your replies. No - I don't live in a rough area, but watching or reading the news shows that no-one is really safe these days. My wife has a bad hip, and is worse at walking than I am. Just taking precautions and being realistic, as I will never be as I used to be. I spent a very adventurous life from going to sea at age 17, and leaving 31 years later. After that, I built and sold 288 model ships (NOT KITS), and wrote a number of books. I can no longer build models because I also have Bronchiectasis that is aggravated by glue fumes. But I still keep myself busy with my ship drawings and e-book writings. I am by no means depressed, but just getting along as best I might! Here is some of my work, models and drawing - plus one of me in the Falklands - 1982 :
Funny because I am getting two notifications for each post too! Technology is not all it's cracked up to be is it.
Cambrian,
Those models look amazing. Glad you aren’t depressed.
I think looking at the news is in itself very depressing, but my experience is that there are more good guys out there than bad ones. Try and do what you are physically able to do - ‘use it or lose it’ springs to mind.
Best wishes, David
Best wishes, David
Please remember that I am not medically trained and the above are my personal views.
My wife's cousin - just 70 has retired from years at sea joined at 16 made it to his Master's ticket in record time and never looked back. He too makes models and does jig saws - his little house is full of nauticalia - you can't move. He has a little dog who he obviously shouts at when she gets near any of his stuff because she walks past things sideways to avoid bumping into things. When she comes to us when he goes away on holiday and we throw one of her soft toys for her to fetch (her mouth is too small to pick up a ball of any size) and it lands near the curtains or a piece of furniture she reaches for it so delicately we have to laugh. He must shout at her like he did at his ratings I think though actually he's so mild mannered and got such a wicked sense of humour I can't imagine he did shout or lose his temper.
I tried to erase one of the above, and they both disappeared, now they have both come back again. I had best leave well alone now. In late 1992, I threw in a highly paid job at sea in marine electronics because of the way things were going with technology. but it is a lot worse now!
I was down south in 1982 as well but I was up in the air with the RAF and Paras. Trying to make sure that everyone did their jobs properly and I wasn't killed before my 22 year point when I qualified for pension
I was in RMS St Helena, support ship to mine counter measure ships HMS Brecon & HMS Ledbury - I took this from the helicopter - St Helena is in the centre - 1982 - 1983
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