I thought I would share, perhaps an upbeat tone that I hope will cheer at least one person up a little bit.
Two years ago when I was diagnosed with a PSA of 87, I was a very confused, very frightened person. It had hit me like a train, especially when I had turned up for an appointment at the hospital, arranged by my doctor with no idea why I was going there. Doctor had basically said I need to turn up there because one of my readings was a little high and the hospital might want to do a scan... Okidoki I thought, no biggy...
To be fair I should put the doctors' actions into some context... At that time I was a known, complete Needle-Phobe and rarely showed up at the doctor at all as I just didn't want much to do with them apart from my Asthma treatment. The words that I uttered after years of silence that got the doctor's attention in the first place were '... there is one more thing'. Those words set off a barrage of tests. I specifically remember the nurse who had managed to stick a needle in my arm who kept changing vial after vial, telling me that the doctor had ordered alot of tests because I so rarely show up, and as a needle was in, they wanted to take full advantage.
So when I showed up at Oncology that day the world turned inside out and I found my inner-toddler, the Oncologist apparently had no idea I hadn't been pre-warned that I likely had prostate Cancer. So when he looked up from his notes and simply blurted out my name and words to the effect of ... you've got cancer... what I can recall more or less was that much to the doctor and his silently watching student's dismay, I fell to pieces! That's pretty much the only way to describe that reaction. Before I knew it, a male McMillan nurse had been summoned from across the hospital whom I later found out, ran through the corridors to retrieve the 59-year-old hysterical toddler from the senior oncologist's office.
I will say, that even the largest bar of Toblerone I could find weighing a massive 4.5 kg that I bought that Christmas and presented to Oncology could not really redeem me in my own mind!
Anyway. Needless to say, they performed all the scans, did the tattoos and the month-long radiotherapy, and fought valiantly to rid me of needle phobia, doctor phobia, and hospital phobia... (It didn't really work as I'm currently two weeks late for yet another blood test!,,, but they've already had loads and loads and loads just a few months ago!)
So... Here we are. Two years later. I show up for every jab, Covid, Flu, Stomach, Bottom and even though one brand of the hormone therapy created a massive abscess in my abdomen that for some or reason or other I thought I could fix myself with salt,,, untill I realized after some 6 weeks that I had to go Doctor or my dinner would start falling out of the monstrous hole I myself had managed to burn with the raw salt.. That took I think three or four months for them to patiently fix... whoops.. I still show up on time for every appointment apart from the current blood test hurdle which I've stalled at like a horse at the Grand National.
My PSA has dropped to 0.04 which apparently is really really good. But I have at least another year of hormone therapy.
I will say, I despise the effects of the Hormone therapy. What little bit of a man I was... Gone! My muscles and huge strength, diminished... I have to sleep with a fan on my face and I can turn it on and off in my sleep... But. I don't go chasing Hairy men and my partner is fortunately the same age as me and she is patiently waiting. Even my jokes about getting her a virile tennis coach have fallen on deaf ears!
I did say this is supposed to be a bit upbeat and suggested it might cheer somebody up... Well... It has succeeded. It has cheered me up this evening and now I am going to pack up my laptop and head home for dinner.... Seasons Greetings everybody. It's not the end until its the end!
Hello Should I give up I am so sorry to read your post, yes the impact of a cancer diagnosis affects us all and we all react to it in a different way. Now at least you are talking of "curative treatment" so there's light at the end of the tunnel. As for your other issues, they aren't insurmountable - let's see what we can do.
* Your financial issues - give our help line a ring on 0808 808 00 00 (8am to 8pm 7 days a week) MacMillan have specialist financial counsellor's who can help in dealing with financial issues (and other issues).
* Step-Change are a debt solutions charity who may be able to help you 080 0138 11 11 or www.stepchange.org
* Do you have a "Maggie's" centre near you. They are a support charity for anyone affected by cancer. They offer a wide range of support. To find your nearest Maggie's 0300.123 1801 or enquiries@maggiescentres.org or www.maggiescentres.org.
Don't face this by yourself - we are here to help - you have gone as far as being brave enough to post your issues on the forum - take the next step and ask for some help.
If I can do anything else for you please get back to me.
Best wishes - Brian.
Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm
Strength, Courage, Faith, Hope, Defiance, VICTORY.
I am a Macmillan volunteer.
I agree with all Brian has said above. Maggies and other cancer charities have been marvellous with us. Usually a Maggie's Centre has a benefits advisor visiting every week and you can contact them by e mail if you like as I did. If you have a Maggie's Centre you can go to then please do they have all sorts of help and advice available.
All the best
Des
He wasn't really diagnosed on time as the cancer has spread and the oncologist thinks he may have had it for 4 or 5 years with no symptoms. We were on a cruise chatting to a paramedic on our table and he suggested hubbie had a PSA test given his age. Like you he said he tells everyone he talks to to get tested. I find myself doing the same now. We need to encourage men and get the message out there.
Absolutely! every now and again I put a post on my fb page about it. If just one man starts having regular PSA checks because of that its brilliant.
HI Freefaller, like Shar and yourself, i have told all my friends and many others to get tested, have just read your profile and share your views on communication between hospitals, departments and us is poor. Anyway thanks for the heads up regarding brachytherapy and having a TURP, it's good to know. I see you had A fib too and got it sorted with cardioversion, as i have suspected clots it's too risky for me so will carry on with vagal maneuvers which work for me. Freefaller regarding hospital communication my cardiologist and oncologist have started working together, take care, Eddie
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