Bone mets

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Hi 

just got the devastating news that my pet scan picked up one bone metastasis in my spine at L3 . I was diagnosed in September with aggressive cancer psa 50 but that time scan showed no bone mets only lymph node & prostate spread . The plan was chemo to shrink tumor & rT as curative intent . But now this bone met the rt dose will be palliative rather than curative . I am going for another mri to make sure it’s a met and not degeneration Bcos psa has fallen down significantly with chemo plus size of prostate & the lymph nodes have almost disappeared! So doesn’t make sense how spread to bone happened 

would be reassuring to know how many of you out there have bone mets and how long you have had it ?? Just terrified if I am gone in like 6 months ! I am just 49 

  • I have advanced prostrate cancer diagnosed in July 2021. I'm on Hormone therapy and doing fine. I was told 5 to 7 years on current treatment but research for new treatment is moving fast. There will be many more on this forum who can offer some long term positive stories. I don't think this is necessarily a death sentence anymore.      

  • Thanks for the reply 

    that’s reassuring 5 to 7 years . Did you have radiotherapy? Or just HT only ? 

  • Hi,

    I've been on 12 week Zoladex jabs since May 2020, with virtually no side effects, (I was Gleason 9). Maybe I'm lucky, but PC is not a death sentence anymore! My PSA is fairly constant at around 1 soGrinpleased all round. I'm told I'll be on HT for life, but hey, if it keeps me going I'm happy!Grin

    So keep positive everyone, and best wishes to all.

  • HT only, as cancer was contained within the gland thankfully.

  • Just HT. I have my first follow up this week so I will ask the oncologist more about bone mets and keeping the cancer growth at bay. 

  • Former Member
    Former Member in reply to Sussex20

    Hi Sussex

    can I ask how many bone Mets you have please.

    Hubby too has bone Mets, but at the moment he looks and acts as if nothing is wrong with him.

    Ginny

  • Lots. I really don't know. I find low impact gym work and cycling easy and have no pain. Walking long distances will get slightly painful and I noticed pain yesterday whilst digging. I have my first follow up later this week so I'm going to ask for more information on bone mets and how the drugs will manage them .

  • Former Member
    Former Member in reply to Sussex20

    Hi sussex

    Can you let me know how it goes please.  I am going to try to find out off local nurse this week how many hubby has.  I think he has lots too. 
    Thanks. Ginny

  • Have you got bone mets ? If so where all & how much is your psa now ? What HT therapy are u on ? Thanks 

  • In one spot on L3 

    what bout your hubby ? When was he diagnosed and what treatment is he on ?