Gleason 4+4=8 and NANOKNIFE / IRE

FormerMember
FormerMember
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Hi all

I'm interested in hearing from anyone who's chosen IRE/Nanoknife with a Gleason 8 diagnosis.


I believe Prof. Stehling in Offenbach is the only one who offers it and my consultant surgeon in Dublin thinks it's beyond the bounds of being a reasonable choice (he's not against IRE in less aggressive cases).


I'm booked to travel on June 11th.


Thanks for any input.



Cillian

  • HI 

    I am interested to know about Nano-knife treatment, I have been diagnosed recently in Belgium in Brussels I had a biopsy which confirmed a tumour with Gleason score (3+4) 7, Urologist advise is the entire removal of the prostate which I am very sceptical about, I am 65, I live and work in Brussels and the health system here is totally different from NHS.

    I appreciate any information, all the best and good luck

  • FormerMember
    FormerMember in reply to Incredible1

    Hi incredible1

    having had Ire twice now, I definitely think it’s worth a go for you. But beware, it’s not inconsequential, my advice is go and see Prof Emberton in London, don’t go anywhere near Prof Stehlling in Offenbach, he left me incontintent and impotent! My quality of life is a train wreck after paying him a lot of money to try and preserve it! Good luck!

  • That is the big difference between prostratectomy and nano knive. you’ll only have prostratectomy once

  • FormerMember
    FormerMember in reply to YoungMan

    That's true, I can't argue with that!

  • FormerMember
    FormerMember in reply to FormerMember

    Hello,am a bit late coming back but due to the urgency had to make a fast decision.

    After examining all options especially focal therapy I decided to do radical prostatectomy (open).

    I had the operation on 14 th February,Gleason 9 and last PSA was around 14.(no bone infection no metastasis)

    The operation was done with frozen section biopsy during the operation allowing the surgeon to cut very close and also do nerve sparing on one side.

    The catheter was removed after 7 days and I was released after ten days but with one wound drainage bag that was still secreting (the other had stopped after 3 days)

    The bag was finally removed yesterday and it is a big relief.

    Despite Gleason 9 and slight capsular penetration the result in the biopsy was such that it is considered G3 but R0 so no remaining tumour discernible.

    Lymph nodes were clean.

    Continence  is not perfect but working on it (I am 69 so thats expected) but can travel an hour without any real mishaps.

    I can sleep too without leaking and its improving as the pain subsides.

    The operation is very heavy and one and I recommend those considering it to watch Christopher Edens video as it is more than truthful.

    One still lives with the risk of recurrence even with tumour removal but we will check PSA 3 months after operation.

    I am not happy with some advice to also have radiotherapy to kill off latent cancer cells in a few months.

    I will be reporting on that and would love to hear from people who had successful ops and then had an elevated PSA after.