Our journey continues....

Polly1912 2 hours ago

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174 subscribers
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Hello

All details in our bio

Paul had his second Oncology appointment today to start the next stage of treatment.

Its been a tough decision, especially with all options laid out. Initially we leaned towards Triplet Therapy, hit it hard and fast, but after research, conversations here and discussions with our Oncology team, we have chosen to add another hormone treatment and keep chemo as a future option.

This decision was made together but ultimately its Paul's choice, and the right one. Quality of life means everything, if given the choice between 5 amazing years or 3 amazing years and 5 difficult ones, Paul would choose 5 amazing years every time and I admire him for that.

We dont ask about prognosis, no one can truly answer that. Tomorrow isn't promised, so we focus on today.

Treatments for PC are evolving, and we are hopeful that Paul will have many tools in his toolkit.

Our treatment plan - start Abireratone tomorrow with prednisolone, fortnightly bloods for 12 weeks with 4 weekly calls from a specialist nurse. If Paul tolerates the medication well, he will move to monthly monitoring after the 12 weeks.

We will only see the Oncologist again if PSA rises or treatment plan changes.

We can not fault the care and treatment from NHS Tayside, this has been execeptional️

Thank you to everyone here for your support and inspiration

Fingers crossed for a great response and fantastic PSA readings

Wayfarer 1 hour ago

Hello Polly (will always think of you being called that!)

We are just behind you, with Apalutamide to be started imminently. Our oncologist - 2nd - meeting is a couple of weeks away, when we will get the results of a second (Fdg tracer this time) Pet scan, as the PSMA one failed to show up anything....naturally very concerned this may reveal a spread. However treatment has started (PSA now 0.2)..like you I am hoping that treatment side effects will be tolerable and still allow a good quality of life,

All the best to you both, C & S

Polly1912 1 hour ago in reply to Wayfarer

I should really sign off my posts as "Claire".....good luck for the scan! all the best to you guys

Wayfarer 1 hour ago in reply to Polly1912

I like the anonymity - we haven't shared our 'predicament' with many people, although this is a bit of a strain at times. With no symptoms, I respect his decision as he doesn't want to be defined by this disease and keep living as normally as possible for as long as he can. This lovely group is invaluable for its support and knowledge isn't it?

Mr U 1 hour ago in reply to Wayfarer

You have everyone’s support with the safety of anonymity as you say, but you should feel free to shout out any of you worries for you or your OH anytime to either ask or just blow up. We all fear the future sometimes and we all cry. But the support I get from here keeps me more normal.

Use this forum as you wish, as we do too, and realise you’re never alone.

good luck x 2

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