Advanced aggressive prostate cancer that has spread to liver

Hello liv88

My when things go bad, you feel helpless about the outcome. Having chemo twice the second about 4/5 months ago. I got sepsis on each bout of chemo, with a few other complications. 
The second ( and I’m a pretty strongh guy, ) I had to stop quality of life was extremely poor.

With your other half, you seem to know what to look for, eg temperature any signs of illness or reacting to the treatment. Tiredness and fatigue will be expected, the prognosis is never a given, as he may well take the treatment in his stride, which would be a blessing. I have one treatment left, it’s called Radium 223 worth asking your Onocologist about this.

My opinion is enjoy Christmas and all the fan fare, me and my wife look on this as possibly my last one, so why. not enjoy it.

 joeven - I’ve said it before and I’ll repeat it here. I do what I can in our little community (although not so little regarding people reading it, with many thousands reading what we write, in the search for information and reassurance).  Anyway, back to my point: I am in awe of our advanced PCa people (men and their other halves).  joeven - you are in that group of fighters - you are a true warrior and I salute you.    AW

Hello Alpine Wanderer 

Alpine Wanderer said:

(although not so little regarding people reading it, with many thousands reading what we write, in the search for information and reassurance).

You are quite correct AW. By the end of the year the Community as a whole will have had over 10 million page views - we must be doing something right.

Best wishes - Brian.

Hi AW

We are what we are, positivity and fighting against this horrible cancer, especially us terminal victims.

We greatly rely on the Onocologist for the best treatments, touch wood mine has been really great.

My one problem is ( and I’m sure it’s not cancer related ) is my knees, I’ve been waiting around 37 weeks for a procedure, yes I know others are two, but this has got progressively worse, to the point where my wife follows me around because I’m so unstable.

The last bit was me having a whinge sorry, but depending on my blood results, is what the next step will be. My wife and she is my carer, hopes I won’t get the treatment yet, as it’s my last go, I don’t even know if I will be fit enough as I know no one who’s had this treatment, as it’s three sessions three weeks apart.

Stay safe

Joe

Wow!!! That’s an amazing statistic! 

Hi Joe, I just hope you both have a lovely Christmas and New Year full of cheer and great memories.  Wait until 2025 and resume the fight.  All the very best from me & Mrs AW.   

Hi jenny28

All what you read which is sent by me is true, when I was in hospital a month or two back, I had 26 pints of fluid taken from both sides of my chest, after Christmas I will be going back to have some more drained.

The slightly worrying thing because I had an mri scan they could see the damage to my liver, it has been scared to the point it won’t last 2 years,nthis I put down to my last chemo which really did a job on me.

Stay safe

Joe

Hi AW

Thank you and your wife, while I’m still alive and kicking, although nearly house bound, I always enjoy Christmas and my poor wife who carries so much stress is going to make sure I enjoy this Christmas bless her. Thanks again both of you.

Stay safe

Joe

Hi Joeven,

I think you’re incredibly brave and I wish you the best of Christmases with your loved one’s.

No - I don’t know you (!) but my OH has a similar diagnosis and I know he’s brave too as are countless others in the community.

We recently had a big sigh of relief when a friend pointed out to us that a text message sent last week (actually on my OH birthday) from urology, gave the results of a bone scan and the fact that new disease had been found. The text message had misspelt ilium instead calling it ileum. For 2 days I thought my OH now had metastases in his small intestine . But no - they’re in the hip - which we already know about.  
Communication by text huh? 

Sending warmest wishes

Thank you. I’m sorry to hear all of this. It sounds very difficult. Chemo can certainly be destructive as well as beneficial. Perhaps we should be grateful that my OH can’t have it as his heart is too weak…..
I’m wondering - where can I get hold of your vampire novel? My OH likes these sorts of novels and thrillers - Steven King genre….