8 months on from the last Zoladex implant....

  • 8 replies
  • 144 subscribers
  • 254 views

I'm now eight months on from my final Zoladex injection (24 months worth) and am still having horrible day/night 'hot flushes'. Two months ago I complained about the hot flushes to my GP, who ordered bloods to be done. The only results of note were testosterone at 0.7 and LH Hormone at 0.1.

The GP asked the Marsden and endocrine dept (at my local hospital) for comment, and at a subsequent appointment told me that her advice was that 'things will subside over the next year, or so'.

I'm averaging 16.6 hot flushes in any 24 hour period (about 6.5 a night and 10.1 during daylight hours) - and they're bad, having to dry off in the somewhat cold air outside and, at night, having to sit on the edge of the bed until the bed and I dry off enough to regain some sleep. I'm desperate - so little sleep is seriously affecting my relationship as I'm permanently 'a grumpy old bar steward'.

I've tried sage tablets, cbd oil and alcohol but still am not getting sufficient sleep (about 4 hours a night). My consultant told me to arrange a series of acupuncture treatments as that would help - so I tried... As a pensioner, I am not able to organise a major bank loan to pay for such treatment!

Help!

Andy

  • Hi  that sounds pretty bad.  I guess it shows that the HT takes a long time to leave your system.  Hopefully others on here will have real life experiences.  Just a thought, but have you managed to identify any triggers that set you off.  I find if I am too hot it ends up with a hot flush.  Also red wine seems to have the same reaction, although personally I like red wine more than I dislike hot flushes!  Hope you get sorted out soon. David

  • Hello Andy ( 

    I am so sorry to read that. Has your G P considered prescribing medroxyprogesterone or cyproterone acetate? i am aware this is available and I understand it works.

    My sage tablets took a couple of weeks to work but they have been holding the flushes at bay for 2 years now.

    I hope the above works - good luck and let us know how you get on.

    Best wishes - Brian.

    Community Champion badge

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm

    Strength, Courage, Faith, Hope, Defiance, VICTORY.

    I am a Macmillan volunteer.

  • My GP is depending on the opinion of my team at the Marsden and neither of them are considering any remedial action. I took sage tablets for nearly three months, with absolutely no effect, before trying cannabis oil which worked for a few days. Nothing else has touched the problem.

    They don't seem to care, depending on 'time' to sort it out, but I'm left in a state of 'limbo' where I struggle to get through a day - let alone another night. 

    I'm sitting here, with the horrific vision of another disturbed night, and they don't seem to care - 'it'll all be alright in about another year'. They ought to try it!

  • Unfortunately I can't afford red wine that often... 

    However, after 16+ 'hot flushes' a day I'd happily devour a bottle to two of the red amber... BUT, I doubt she'd support that sort of action...

  • I had severe hot flushes too, about one per hour day and night, my oncologist put me on Medroxyprogesterone 20mg and that's sorted it. I get a couple a day now and they're much milder. 

    G

  • That's wonderful, but my care crew seem happy to leave me to suffer - for the next 'year or so'.

    I'm baffled - why the differences/change between patients?

  • Hi , 

    mot might be worth asking and tell them your in this forum and although not medically qualified .  Very qualified in the art of severe hot flushes . Hope you get support 

    Liz & OH. X

  • Andy  

    Personally I would become much firmer with my request for help if I were in your situation. I like others on here have had no success with sage etc. but my sweats are sufferable.

    From your words above I get the impression that the medics are simply trying to look after their drugs budget!

    Rod