MRi Scan two lesions in prostate

Hi Mack

There's plenty of people on here you will explain to you much better then me,after I had the PET scan and all was clear you'll definitely start to feel better especially when you a treatment plan to to focus on it all gets a lot more easier, 

I'm sure someone on there will explain to you your diagnosis in great detail, it will start to feel better ,

Best wishes 

Peter 

Thanks for best wishes same to you 

 Hi Mack69 ,

From what I am able to see, you are new here.

So it's welcome to our little club, which no one wants to join, but once need drives you, you will be really glad you have. We support each other, and share knowledge.

I was in your position - including the not eating and sleeping - 6 months ago.

Now, I have been on Hormone Therapy (HT) for that time, and will be starting Radiotherapy (RT) on 06/01/2024.

I am being treated with curative intent, which is actually good news for you, because my "scores" are much worse than yours.

You can see my diagnosis and the journey I am on by clicking on my username above

I try and update it every time something happens, because I am using it as my reference.

You could do the same with the note you have put in above. Copy it, go to your home page, click on "Profile" and paste the lot in. Anyone trying to offer advice will then look at that to get the basics, and offer you concrete comparisons.

I can only offer a perspective that was laid out for me, which has worked for me, and which has increased my confident throughout the last six months.

It didn't start like that.

I was very down, much as you seem to be. For me, the diagnosis of cancer had always been a death sentence, and that was how I felt.

There were two pieces of advice I was given, one on here and one by a retired GP and then a cancer nurse specialist.

1. From this group - find out everything you can about prostate cancer. Yes, some of it might be worrying, but much more of it will be helpful. There are treatments. There are many treatments, and then there are more treatments after those. All the treatments have side effects, and that will be where the battle is. I have found it easier to deal with than I ever imagined.
2. From the medical people - even the aggressive forms (one of which I have) move slowly by comparison with other cancers. You have time to get the right plan together.

These two pieces of advice have brought me through.

Check the idea of "expert patient". You will feel better because you are doing something. Don't use doctor google. He's a pillock. Use the information here, on Prostate Cancer, on Prostate Cancer UK, on Cancer Research UK, and on Prostate Cancer Research UK. Study these sites in the same way as you might have done for an exam, because you will benefit.

Here's what I discovered about myself:

• I had an aggressive cancer that would kill me if left untreated. Those last words are extremely important.
• The cancer had escaped the prostate - yours does not appear to have done so - but it was all contained in the pelvis and was therefore "locally advanced". That can be cured. The five-year survival rate, with treatment, exceeds 98%.
• All the treatment's have side effects. The side effects of the treatments for this illness have psychological effects, which may be more than the physical ones. There are sexual matters to deal with, but there is help for these too. In my case, the side effects are now part of a new reality, which I am truthfully not having as much problem dealing with as I thought I would.
• The treatment is going to be long. In my six months of HT, 37 days of RT, and HT continuing until 2027. In your case, probably less. As I said, mine is aggressive.
• Doing my homework made me prepared for all of this, although I do get times almost every day when the thought pops into my head "You've got cancer you idiot! Worry!". I give that thought it's 2 minutes of fame and then go on about my day.
• My oncologist told me to exercise. I took advice from my doctor and joined a gym. I am probably fitter now than when I was diagnosed.
• When I couldn't sleep or eat, I went to my GP. He gave me a short course of tablets to help me sleep. They worked. I didn't have to take the full course.
• I read about mental health and understood that what I was going through was a common reaction, and as I did more, I would regain control. I did.

Perhaps one last thing you might need to know is that you have everything to play for. You are not only not beaten yet, you are on the way along a road that now leads most people to victory.

I hope my notes help.

Put your information in your profile, and then start asking your questions. There are some amazing people who will help you.

Keep smiling, it confuses everyone.

Steve

Mstve2 thanks this makes me feel better I am so glad I found this forum prayers you continue to get better 

Good Evening Mack69 

Another warm welcome to "our exclusive club".

I think Steve mstev2 has stolen my thunder with his cracking post above. All I can say is from the information you have given it very much looks like you will be heading to a "Curative Pathway"

Best advice I can offer is although PIRADS 4 is a high chance you have Prostate Cancer enjoy Christmas, try and relax and keep us updated with details of your Urology meeting.

Remember no question is too trivial and we are all here for you.

Best wishes - Brian.

Merry Christmas to all on here hope you all have a lovely time

Starting hormone therapy in the new year so a late Christmas present I'm not looking forward to 

Best Wishes 

Peter

Good Morning Peter

Well, here's an early Christmas present for you - a link to our guide to Hormone Therapy for Prostate Cancer:-

https://www.macmillan.org.uk/cancer-information-and-support/treatments-and-drugs/hormonal-therapy-for-prostate-cancer

I've just completed 3 years on it - i think I had every side effect and some that aren't even listed!!  Was it worth it?? Yes.

Best wishes - Brian.

Hi Brian

Thanks for the early present it's much appreciated definitely worth being prepared 

Best wishes

Peter 

Peter (Psb2024 ) just get as fit as you can before HT.  Have a lovely Christmas and take each day as it comes once you start.  You may surprise yourself at how well you get on with HT. David

Hi David 

Yeah back on the treadmill in the new year,fingers crossed I'll deal with the HT ok ,have a lovely Christmas to 

Best wishes 

Peter