Hi my name is Peter
I was having treatment for an overactive bladder with prostate blood test as part of treatment which came back at 7.7. I then had an ultrasound, GP said I had enlarged prostate but nothing of concern. Has MRI scan as part of pathway which has revealed lesions on prostate rated 4 and 5. Having a biopsy, no noted signs of other lesions throughout body. Notes 66.9% chance of prostate cancer and really worried and having bad anxiety and not sleeping, I have the constant peeing which I thought was my over active bladder no pain peeing small leaking and sometimes stop and start to finish,I've pretty much resigned myself to having prostate cancer and finding very tough to deal with like everyone with the horrible disease, any helpful advice would be much appreciated
Kind regards
Peter
Just rang my clinical worker specialist prostate nurse if I hadn't heard from them in two weeks, answer phone saying they only reply Tuesday to Friday so she might reply today you never know ,so the wait probably continues until next Tuesday unless I get a appointment send to the nhs app to go in to see them ,which I doubt.
Hope you are all well
Peter
Morning all
Clinical prostate nurse got back to my answer phone message yesterday and good news no cancer in bones found in pet scan ,urology team were having a meeting yesterday afternoon with me being one of the topics about drawing up a plan for me ,
So a huge sigh of relief
Best wishes
Peter
Hello Peter ( Psb2024).
Well thats great news. Just In time for a relaxing weekend.
Treatment plan Monday and off you go! Happy days.
Best wishes - Brian.
Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm
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Good Morning Peter (Psb2024 )
Yes, if they are both suitable treatments you should be offered meetings with both so they can plead their case.
Keep us posted on Monday’s meeting.
Best wishes - Brian.
Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm
Strength, Courage, Faith, Hope, Defiance, VICTORY.
I am a Macmillan volunteer.
Hi all, this is the conclusion on my pet scan report
Can anyone tell me if the 'more than likely' term is normal practice with the S1 and S2 vertebral doesn’t feel me with confidence ? Has made a little anxious. Also the part that talks about an isolated malignant node.
Conclusion:
Intense PSMA uptake corresponding to the signal abnormalities on MRI within the posterior aspect of the prostate consistent
with primary prostate cancer.
Additional areas of increased uptake in the prostate may represent additional sites of primary prostate cancer.
PSMA avid 7 mm nodule abutting the anterior surface of the right psoas.
An isolated malignant node should be considered although appearances are not diagnostic for this.
No malignant appearing nodal disease elsewhere.
Focus of mild PSMA uptake at the articulation of the S1 and S2 vertebral bodies is more likely to be benign/inflammatory.
No PSMA avid bone metastases elsewhere.
Mild increased PSMA uptake within the tail of the prostate is likely nonspecific and could be further evaluated with CT protocol
of the pancreas if required.
Numerous mildly PSMA avid subcutaneous lipomas
Prostate SMDT 29/11/2024 outcome:PSMA PET reviewed., no evidence of prostate cancer mets. 7mm avid lesion anterior to
right psoas muscle is indeterminate (separate
to ureter). As there are no other sites of mets, assume that psoas lesion is unrelated to prostate cancer and proceed with radical
treatment. Send ITR to SMDT clinic MP75D. cpg4.
Investigation results
Lab results
Nurse has said no cancer in bones and now waiting on appointment for surgeons and oncology.
thanks Peter
Hello Peter. Well that looks pretty good. What you need to know is that the PSMA PET scan can pick up both benign and malignant changes throughout the body. To give you an idea of the extent I have attached notes from a conference but it does explain the difficulty with interpreting bone uptake. The avid lesion by the psoas muscle has been viewed in relation to the other findings and in probability is not related to prostate cancer. We are not medically trained so check with the experts when you see them.
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