Hi everyone, if you read my bio I had an MRI that showed a 14mm peripheral zone lesion. This led to a 15 core biopsy . Only one core found very low volume Gleason 3+3=6 in a different part of the prostate.
So I’ve been put on A/S quarterly psa. Checks and a MRI in 9 months. My consultant has set my psa at 6.5 for any recall which I feel ( not sure why) is quite low. previous psa were 3.7 then repeat 5.04.
I just don’t know how to feel about it, sometimes I’m happy and relieved other times I question the biopsy considering it was a pirads 4 lesion. They’ve told me the biopsy targeted the abnormality and nothing was found there, maybe I just have a trust issue. Has anyone else had similar and how they felt about it??
thank you for taking the time to read my thoughts I’m just a bit all over the place with it.
Hello SCJ
Just a quick one, you have had a biopsy, we have your PSA and Gleason Score - do you also have the TNM staging?
Here's a link to a great publication on Active Surveillance from Prostate Cancer UK-
https://shop.prostatecanceruk.org/our-publications/all-publications/active-surveillance
i am aware that your feelings about being on AS are "all over the place" and i assume this is due to the PTSD. I am also aware that you may be thinking that some action will be needed to deal with the cancer in the future. I hope you don't mind but may I make 2 suggestions:-
* You return to the Oncology team (speak to your Macmillan Nurse or CNS - Cancer Nurse Specialist) and tell them of your PTSD and you have anxiety about the rising PSA.
* Give our support line a call on 0808 808 00 00 (8am to 8pm 7 days a week) let them know of your history of PTSD and have a chat with them.
i hope this helps - let me know if I can do anything else for you.
Best wishes - Brian.
Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm
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