Side Effects from Triptorelin Injections

Hi, sandgrown, I can echo what you have experienced,  side effects from the hormone tablets has given me many side effects,  mainly weight gain,  hot flushes,  mood swings and feeling tired,  The injections of which I've had 2 so far and next 1 due 9th June have continued the hot flushes and feeling wiped out , walking is even a struggle these days, used to walk for miles at work and did 2 prostate cancer research sponsored walks to raise funds, in 2 months did a total of 300 miles. now i can't  walk to town and back without almost having to crawl back its under a mile, anyway i go to bed fine then wake up with pains all over,  not that i sleep for long what with the sweats and needing toilet,  thankfully toilet vists are decreasing but still have to race to get there in time and have to plan trips out very carefully.  The radiotherapy 20 sessions added to my problems, became blocked up, didn't go some times for days and was hard to pass urine,  painful and slow, which passing urine is getting easier,  don't know if this other problem is linked to the treatments,  I'm getting sore patches on ankles and very itchy and swollen. The hot flushes I've started taking sage tablets from Holland and Barretts , it is helping to mainly control them. I struggle with too much exercise due to also suffering with stenosis spinel channel nerve damage and possibly facing surgery.

Will be seeing my consultant on Thursday 5th June so praying my PSA levels have started dropping,  will update after seeing him

Wow! Just the repIy needed!

Well done to get through that trauma.! 

I am discussing my list of co morbidities Monday 2nd June with surgeons at 7am.

If they promise not to kill me am going ahead, sod the cancer, knackered heart , AF and possibly rheumatoid arthritis! and the 11 meds a day!

Grankids are only 1, 6,7,and 8! Need to show them how to rebuild petrol engines and tune multiple carburettors!

thank you

Bernie

my granddaughters are 7 and 1, Hardest part was having to tell the eldest 1, she is very grown up for her age. She would keep asking why is Gramps seeing the doctor and visits to hospital.  Once we knew what we was dealing with, we sat her down and explained to her that yes I'd got prostate cancer but because it was luckily discovered early got a very good chance of been cured. Still broke her little heart kept asking are you going to die soon Gramps, I managed to convince her not if I have my way.

 Caught early? That’s great! 
 So long as the cancer has not punctured it’s sac

you will make great progress. 

good luck.

my granddaughter is 6 and says “I’m here to help”

forgot to say we have a golden lab dog, we wondered why all of any sudden few weeks before I first went to Doctors,  she never left my side and she still sleeps at my feet. They do reckon dogs know when you are unwell. When we go out for day I struggle to keep up , my granddaughter always comes back to walk with me.

Our Dalmatian has always sniffed my breath even before I was diagnosed with Prostate Cancer,still does it, he doesn't do it to my wife and son.

I did read last year that there was a study going on to see if dogs can smell cancer on your breath. Their smell is out of the world when it comes to our ability to smell anything.

As for Triptorelin, it has caused me huge problems both physically and mentally but I have had loads of support from my wife, GP, Maggie's, local cancer support group that includes NHS nurses, Macmillan and Maggie's, I did ask if I could be castrated at one stage, my GP said he didn't think the NHS would do it, but said he had some scarpels, gulp!

My locum oncologist said I could try tablets but  said as I had got through a year of triptorelin It would be better sticking with it. So I'm a month into my third injections, a 9 stone weakling with bad moods.

But things changed

I have commented elsewhere here about having a test for vitamin B12 defiency which proved positive and I have  started on  a course of 6 injections over a fortnight and then one every three months for the rest of my life.

What a difference it has made, I'm still a 9 stone weakling which is the pits but my mental health has improved dramatically after the fourth B12 injection. My sister told me to get tested, my GP was in total agreement and best if all my wife is a happy bunny once again.

Cyril

I got good news on June 5th. Had a appointment with the consultant,  they requested PSA blood test they asked for showed almost untraceable at 0.01, big difference from starting at 21, anyway they have stopped the injections thankfully as I was due to have it following Monday.  They now will be checking my PSA levels every 6 months. Not got the all clear completely yet but she said its looking very positive but if anything changes,  let us know straight away 

Safeways said:

I did ask if I could be castrated at one stage, my GP said he didn't think the NHS would do it, but said he had some scarpels, gulp!

At least he didn't say "Wait a minute, I've got a couple of bricks over here."

Hi Cyril,

thanks for your comments.

if you wanted to avoid triptorelin why could they not simply remove the prostrate?

the sack must not be punctured though.

bernie