Prostate cancer

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I was diagnosed with advanced prostate cancer in May 2023

I only learned this because I landed in hospital with a collapse.

I had been having a problem for 2 years with pain in my right leg.I had been going to the doctors the first one said can you bend down and touch your toes i said yes he said just keep doing what you’re doing and sent me on my way.Next doctor said it bursitis and gave me tablets and put me on the list for physio.Waited a while seen physiotherapist she gave me exercises made no difference. I started asking for scans.

Next was cortisone twice asked doctor for scan he said it wouldn’t show bursitis. No blood tests were offered next I was getting really bad sweats during the night bed clothes were ringing.Still no offer of scans etc.. Anyway my leg collapsed ended up at Ane . They did a scan and took blood tests.

The following day eight nurses and doctors walked into my room I thought this doesn’t looked good.They said im afraid to tell you that you have we think advanced prostate cancer .Your PSA Is 3,671 normal for your age no more than 4.

I was in the thousands they said did you not have any symptoms I said I drink loads of water during the day so running to the toilet felt normal.I have been on injection’s and Arbiraterone since May 23 my PSA is now 2.5 and being monitored.I went for the biopsy and the doctor looked at my leg and said sorry we can’t do it because you’re lower leg is still swollen from the operation I had to get a steel rod inserted in my femur as the cancer had spread to it and weakened it.They said your doctors were wrong you have not got bursitis or Athritus.

  • Hi armie, welcome to the forum, your PSA was unusually high but there are many reasons for that,  exercise and sex can really impact your PSA score, after you have your prostate biopsy and MRI you will be told your gleason and T score, I am happy you are getting the right treatment and like everyone one your heads spinning and you have many questions Once you have your test results please get back in touch as your not alone and there are many wonderful people on this forum who have been through it all and would be happy to help you through yours. take care

  • Hi Thanks eddiel

    They haven’t offered a biopsy as the surgeon took a scraping of my bone when he did the operation they sent it to the labs and the consultant said it confirmed it had reached the bone. So I don’t have a Gleason score etc.

    And because I am not in any pain at the moment they are holding RT back for me.

    Kinda looped over the biopsy and RT

    .

  • Hi Armie,

    Welcome to the forum. This has blown my mind! I just read it out to my partner " bend over and touch your toes" unbelievable. How are you finding Abiraterone? my partners been having for sometime and it's a great drug. It really knocks the cancer back quickly. You can read his journey with it on my profile you are interested. I think you've really knocked everyone out of the park with your score, but there are people on here that have similar high counts at the start. I'm no expert , but it does seem that once you get to a certain number in the 100's and thousands it does seem to be similar overall with treatment. HT is pretty amazing how it stops everything in its tracks and to see you are now 2.5 is impressive stuff. How are you feeling now? 

    LSlight smile

  • Hi Barry

    Thanks for your reply

    i am feeling fine it’s weird isn’t it I am still doing weight training in the garage.

    my bloods are all ok liver kidneys al fine both treatments seam to be doing the trick.

    Bone enzyme getting stronger each blood test..They said it’s in parts of the pelvis and front thighs but no pain really at the moment.All the consultant s are baffled how it didn’t have me floored before it was discovered.

    yeah I’ll read your partners story definitely.

    Thanks

    John

  • Hi Barry

    i read your partner’s story being in the ward is an understatement. To have a low score like that is amazing now.I read on the forum somebody said they were talking to their oncologist and she said we have advanced patients still on their books after 15 years I’m taken that comment go the moment.

    I have named my cancer Alex we are both in a boxing ring and I am going to beat him.

    Your partners right you have to say f—k it and go for it. As this isn’t fair on us.

  • I agree! Definitely not fair . It does seem fitness is  a key to doing well though and you are clearly giving “Alex” a good pounding! 

  • Hello   Welcome to the "club" - late to the show today but I have been out.

    What an amazing story - but you are doing fine and that's what counts - so long as the treatment works for you and the cancer is under control and not spreading, that's great.

    Feel free to ask any questions you may have and please, keep us updated with your progress.

    Best wishes - Brian.

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  • Hi Thanks

    Barry

    i will definitely keep you updated.

  • Hi Millibob

    Thank you

    i will keep you updated 

    John