Peripheral neuropathy

Hi Lyon,

I suffer from neuropathy in my feet from my preoperative chemo back in march, I am now on post op Chemo round 3 one to go but still suffer the chemo was toned down to take the neuropathy into account, I am on my fourth medication to try and help but nothing seems to work, my oncologist says it's just a matter of time and things will improve but this could be long term. I am now under a pain management team who are looking at a Lidcaine infusion again it's not guaranteed to help but I will go by their advice. The main thing for me is after my stomach removal I am now cancer free so the niggling sometimes more pain I can put up with.

Hope uour neuropathy doesn't get yo bad for you.

Mick

Hi Lyon 

I thought it was all quiet on your front - welcome back - so sorry it's not with good news. It's a questionIi can't answer but you know our lot - someone will get back to you - I have read the answer from Narrowlight so I hope this helps.

I hope all goes well on Friday - keep us posted and fingers crossed.

Best wishes - Brian.

Hi Brian  Good to hear from you.  It's wonderful to have this forum with so many people to reach out to when help is needed.  I too am keeping everything crossed for a good outcome on Friday and will let you know.

Sorry to read this. I did send you a private message a week ago as I was wondering how you both are 

Hi Shar  Good to hear from you.  I hadn't picked up your message, but will do so now x

Wish I knew how to use this forum properly!  Having to reply to my own post in order to update, so hope you get this okay.  Friday's appointment went much better than we expected and the oncologist is happy for chemo to continue, albeit at a reduced strength, so we go this afternoon for the fourth cycle.  We're delighted about this.  Readings are good and the cancer is responding well to the treatment.  However, the neuropathy, which is currently just numbness in one to on each foot, could worsen and be irreversible, which could lead to mobility problems, hence the caution.  We have to source some soft shoes so his feet don't get damaged by rubbing.  Sounds simple, but I have enough trouble getting him to wear the nice soft beanie hats I got him when he lost his hair.  He's a trilby or panama man and hates them.  I think they look rather nice, apart from when the wind's behind him and he looks like a smurf! He will not like putting his smart shoes away, but a small price to pay.

He's done so well so far and we've been amazed at how few side effects there've been from the chemo and total lack of pain or discomfort from the cancer.  It's sometimes difficult to remember how widespread it is, so it was a shock to hear the oncologist, when showing us the bone density scan, say his spine is "riddled with it.". Brings you down to earth with a bump.I'm so grateful that my daughter can come with us to the reviews and records everything that's said.  It is so hard to take in everything.

Thanks for your continued support.

Hello Lyon 

Well that's pretty good news - if you discount the neuropathy and the results of the bone scan. .

From the tone of your post though I detect all is well in the Lyon camp and things are going as well as expected so that's great news. 

I wish you well with the continued chemo and my best wishes go to you both.

Brian 

Hello Lyon.

Good news about continuing with the chemo. My husband had to reduce his dose and we were reassured by the oncologist that provided the cancer was reacting to it half way through the course then the reduction would have no detrimental effect. I can fully understand the anxiety you must have been through as being able to complete the course seems like a big milestone in keeping the cancer under control. At least you can look forward to having completed the chemo by Christmas. All the best for this afternoon.

Ooh, that's interesting about the lower dose of chemo, so thanks for sharing.  We are now two thirds of the way through the actual chemo doses, so onwards and upwards.  As you say, another milestone.  All went well yesterday afternoon and we're feeling quite positive.  

On another note, our 43rd wedding anniversary today.  Shame we can't go out and celebrate!

Morning Brian Always good to hear from you.  We are feeling much more upbeat now we know the treatment can continue and has been very successful in reducing the PSA levels.  A cloud has lifted and we're looking forward with positivity and hope.