In a panic

Hello Shar.  Sorry to hear about the panic! My husband had exactly the same treatment - 4 weeks tablets to stop the flare with first injection two weeks in.  He was given a letter from urology to take to his surgery to arrange his injections there. So, I would suggest you contact your GP surgery and get them to sort this out for you. Or, you could contact urology and ask them? Oncology most likely won’t have his records to hand yet. It was urology who instigate the HT?

HTH

Thank you I will try that

Hi Shar

Yes, I had that treatment but had my first injection in the hospital urology department. I agree with WW, I would contact Urology first and if no joy the GP. After my first injection I was sent a copy of the letter from urology to the GP requesting them to deal with my 6 monthly injections. 

I hope this helps

Kind regards

Brian.

Thank you, the problem is we saw the urology doctor private who then got us a private appointment the same day with the oncologist doctors who will be the same doctor that we now see under the NHS. Urology now say they have no records

Also it was the private oncology doctor that gave us the prescription for the tablets. We can see him privately again because he told us it was one of the other and there was no merit in having future radiotherapy treatment done privately 

Should say can't see him

Hi Shar

No need to panic, fortunately PC, is the slowest growing cancer your husband can have. Being kept out of the loop at the start of his journey is hard but things will come together. 
The tablets and injections are the beginning, with all the strikes at the moment, hospitals are overwhelmed, if your worried give McMillan nurses a ring and ask them, their extremely helpful.

Stay safe

Joe

They have said his cancer is aggressive gleeson 4+5 and that is the only word that I keep hearing. To me aggressive means it is growing inches by the day, silly I know but waiting for things to happen makes me feel so out of control 

Hi Shar,

My husband started 4 weeks tablets last Tuesday too. He was given a letter for GP to arrange injections as, according to his oncologist, the GP decides which type of hormone to use out of a possible 3 listed on the letter. He has his first injection of Prostap booked with a nurse at GP practice on 4th July and he had to collect the injection from the pharmacist last Friday to take with him on the day.

I’d ring your GP and explain the situation as they’re definitely going to be involved so should be able to sort it out for you.

Take care x

Hello again, Shar. I vividly recall sitting in the room with the prostate cancer nurse specialist and my husband discussing the start of hormone therapy. She turned to my husband and gave him the prescription for the tablets and the letter for our GP and said, ‘ I want you to understand this. You take the first tablet today and the cancer stops growing today.’ Within 8 weeks of starting hot his PSA had come down from 10 to 0.29. 3 months after radiotherapy it had come down to 0.06. 

Given you are straddling NHS and the private sector I would suggest you GP should be in the best position to sort this for you. My husband has decapeptyl injections every 3 months.