Hi,
I wondered about other people’s experience with seminal vesicle cancer.
With hindsight, I now know that this is not a recent occurrence and the cancer has in fact been there (vesicles) for at least two or three years prior to diagnosis and tumour has also burst through casing of prostate elsewhere too according to the Consultant.
Does this follow a pattern as to where it might spread to next?
I have started on Hormone Therapy (Decapeptyl 22.5 mg) with Radiation to follow, ‘if’ they can shrink the tumour.
My main question is; how does the treatment work when it is not just the prostate itself which is affected? Will the vesicles be lost during treatment? And has anyone had a successful outcome with this spread/type of cancer?
Wishing Everyone Well,
Nor6
Hi Nor6
Hi Not
My understanding is that if in vesicles the cancer is still potentially curable but just makes treatment a bit more difficult.
It often happens that the cancer breaks through the capsule edge and think am right in saying that vesicles are the next target for the cancer.
Sounds like they have caught it in time and the HT treatment should hold it back until RT starts.
Hope all goes well, keep us posted.
Best wishes
Steve
Hi Nor6,
My Partners PC has spread to his Seminal vesicles. (locally advanced cancer) click on the blue flag for his journey so far. Looking at your bio I would say you are at a similar stage ? This is his treatment path in it's most simplest and positive form if it makes sense.;
Cancer is in prostate and has broken through into seminal vesicles. (locally advanced) It's is on the cusp of cure so needs to be hit hard.
Hormone treatment will shrink all cancer cells back. No testosterone = No growth
Radiotherapy will blast the area of cancer and kill/ damage/ disable the cells so they either die off or are disabled and cannot make more. The life of the cell is around 18 months? it will die off eventually and be replaced with new good cells hopefully. In this time you will carry on with hormone treatment to make sure that any other activity is in effect suppressed and suffocated. This is the "cure"
Now theres always a but? you have to keep your eye on it. You clearly have it in your family as your dad had it. So it needs to be monitored and you may have to consider that hormone treatment could, (hopefully not) be part of your future. But one step at a time, you should be well and truly in the 'Cure' zone now.
As for saving anything in this area? I have no idea I would consider it gone, but I could be wrong. If you are considering if you are still fertile that is. But if we are talking about being sexually active and libido, I think after treatment and no hormone treatment you should return to normal. ( maybe nerve damage though) That is a question for the forum and there's plenty of men here with experience of after treatment, I would guess there's still fun to be had
I hope that helps?
Best wishes
L
Hi Grundo,
Thank you for your kind reply. Yes, that sounds about right.
Reading your bio, in some ways, I was in a similar situation regarding treatment. Doctors, understandably, assume you will be wanting to take treatment, which my Consultant wanted to start there and then but in my case I initially refused, wanting time to think things over. The upshot was I was referred to GP for psychological evaluation and general ‘discussion’ .
The reason for my hesitation was that I saw what my father went through and as I already have a number of chronic health conditions I don’t want to add yet more side effects to what is already a difcult life. For me whether to take treatment or not was essentially about taking the avenue of least suffering. Anyway, after weighing things up I reluctantly agreed to start treatment. Only time wiltell if I made the right decision
Thank you again Grundo and I hope things work out well for you.
Best wishes,
Nor6
Hi,
Barry, thank you for your kind reply.
I read your Bio and I have to say I am impressed with the amount of information you have. I didn’t get any.
Yes, regarding treatment that sounds about where I am too, or will be.
When I went in to see the Consultant after the last series of tests (full body MRI and Nuclear Bone Scan) his greeting words were “That’s a big old tumour you have there sir.” He didn’t pull any punches (which is fine by me) and said, as you surmised, that it was just on the very edge of being treatable,
As I said in my post I knew something was wrong for quite sometime but never thought of cancer. Having been on Immune suppressants for many years (for another condition) my system is pretty messed up and I get constant problems with infections etc so I just thought it was yet another one of those.
With regard to saving the Vesicles, frankly, until all this cropped up I had never even heard of them and am embarrassed to say only had a vague idea what the prostate actually did . It’s been a bit of a steep learning curve. I suppose like many people you tend not to notice something until it goes wrong.
With regard to the future I’m 60 and would hope there is some chance of a normal life after this but only time will tell.
Thank you, I appreciate your help and hope all goes well for you and your partner.
Best wishes,
Nor6
Nor,
I have been reading up on PC since being diagnosed in 2013 and joining this forum has also helped.
Def it's the right time to start treatment, hopefully side effects will not be too bad , hormone therapy tends to cause more issues than the RT and these should go away when
HT is finished.
You'll be ok and good luck
Steve
Hi GC (if I may),
I’m glad you are responding to treatment. I wish you well and a full recovery.
Re. Vesicles: Yes, I think I will be the same already even before Radiotherapy. I have been having symptoms for a long time prior to diagnosis. I suppose my main worry was where would it spread to next.
For me, the Consultant was talking about two years of Hormones prior to Radiotherapy. I haven’t heard anything from them since January so I presume they will be in touch if any further checks needed.
Again, thank you for your kind help and advice,
Best Wishes,
N
Whatever cancer throws your way, we’re right there with you.
We’re here to provide physical, financial and emotional support.
© Macmillan Cancer Support 2025 © Macmillan Cancer Support, registered charity in England and Wales (261017), Scotland (SC039907) and the Isle of Man (604). Also operating in Northern Ireland. A company limited by guarantee, registered in England and Wales company number 2400969. Isle of Man company number 4694F. Registered office: 3rd Floor, Bronze Building, The Forge, 105 Sumner Street, London, SE1 9HZ. VAT no: 668265007