Penis Shortening Post Op

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Hi Everyone, hope all is well....this is a delicate subject but would really appreciate some help/advice as the NHS in my opinion are poor at offering up front info /advice / counselling on procedures which affect dramatically quality of life and certainly this topic has never been mentioned.

After much painful deliberation I yesterday told my urology dept. that I will have my bladder , prostate , seminal vesicles removed instead of a 12-16 wk chemo course , possibly followed by radiation. Bladder removal gives me a 35% chance of cure and the chemo route is not curative. Reaching this decision has been really hard .

Yesterday I saw on American health/urology sites and forums people discussing how their penis had shortened after having their prostate removed and how not one of them had been told about this before the op ....

Have people who have had prostate removal experienced this please? As I say I know it is delicate but I am kind of again climbing the walls as to what to do next.

Thank you In advance and please take care!

  • Thank you for your help! It has not been called “penile rehab” but i do take PD 15 inhibitors, take daily Tadalafil and bought a penis pump on my own from reading up on what to do. I willing to make the effort to make it work!

    1. I feel your same pain! I too have prostate cancer and have researched it a great deal! From what i learned by reading and from talking to friends who have had their prostate removed. My understanding i that the surgery does shorten the penis. I don't  feel it is a big reduction with just surgery.  If you have to also take hormone therapy to reduce testosterone the shrinkage of the penis is more extreme! This is required when the cancer has to be stopped from growing when surgery is delayed !  I also have an enlarged prostate which makes the surgery or radiation more difficult because it more than likely will stop urination and require a catheter. Because of that my Dr discussed my taking hormone therapy to stop cancer growth.  He was honest with me stating that my penis and my testicles would shrink 50%!  I had no choice but to do it hoping it would not be such extreme shrinkage. He was right on his information. 
      it is a weird and difficult part of the process but life is more important.  My advice is to avoid the hormone therapy as far as possible because of extreme shrinkage but the shorting of the penis from the surgery is not as bad. Being unable to have an erection is a side effect of any treatment but they say it “may” return after healing.  I hope so! The side effects of treatment are bad but not treating worse. My hope is you will come through this cured of cancer and the side effects will disappear in time.  Best of luck in you treatment!
  • I'm suffering from the shrinking old man as well but I've not had surgery. It's from the medication. Degarelix injections and oral Apalutamide. 

    The consultant prescribed a pump but I've not used it yet. I'm thinking of trying ED treatment such as Cialis which I'd used prior to diagnosis but I need to know if it's OK to take them along with my medication. 

  • Hello  

    Before taking any medication - make sure it's Ok with your team - some medications clash with others and have a very negative result!!

    Best wishes - Brian.

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  • I had that problem too. I was given meds  to shrink my prostate. It said in side effects it might reduce sex drive but i think much about it. I took it six months then realized it not only shrank my prostate but my penis and testicles! It didn't become apparent until i could no longer get an erection  and   Orgasm was impossible!   It is so strange what these medication for prostate do when your testosterone is affected! I never knew how important it is to get the fact on the front end.   Do check with you doctor first but  after i dropped my meds i had success with a penis pump and penal injections. Good luck on your recovery!