Hi Everyone, hope all is well....this is a delicate subject but would really appreciate some help/advice as the NHS in my opinion are poor at offering up front info /advice / counselling on procedures which affect dramatically quality of life and certainly this topic has never been mentioned.
After much painful deliberation I yesterday told my urology dept. that I will have my bladder , prostate , seminal vesicles removed instead of a 12-16 wk chemo course , possibly followed by radiation. Bladder removal gives me a 35% chance of cure and the chemo route is not curative. Reaching this decision has been really hard .
Yesterday I saw on American health/urology sites and forums people discussing how their penis had shortened after having their prostate removed and how not one of them had been told about this before the op ....
Have people who have had prostate removal experienced this please? As I say I know it is delicate but I am kind of again climbing the walls as to what to do next.
Thank you In advance and please take care!
I'm suffering from the shrinking old man as well but I've not had surgery. It's from the medication. Degarelix injections and oral Apalutamide.
The consultant prescribed a pump but I've not used it yet. I'm thinking of trying ED treatment such as Cialis which I'd used prior to diagnosis but I need to know if it's OK to take them along with my medication.
Hello Tomjef
Before taking any medication - make sure it's Ok with your team - some medications clash with others and have a very negative result!!
Best wishes - Brian.

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I had that problem too. I was given meds to shrink my prostate. It said in side effects it might reduce sex drive but i think much about it. I took it six months then realized it not only shrank my prostate but my penis and testicles! It didn't become apparent until i could no longer get an erection and Orgasm was impossible! It is so strange what these medication for prostate do when your testosterone is affected! I never knew how important it is to get the fact on the front end. Do check with you doctor first but after i dropped my meds i had success with a penis pump and penal injections. Good luck on your recovery!
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