Confused ??????

Hi

Sorry to hear about what he’s going through, it’s normal to loose or put weight on, not certain what he eats or drinks could make a big difference. Things like fish, chicken, salads, wholemeal bread, stay away from fried foods or red meat, drink water or pomegranate juice.

A tablet which many of us including me called Alca D 3 is very good for the bones, if he’s having back trouble I wear a back brace helps a fair bit, not that expensive to buy off the net less than twenty pounds. I also use a mini excersize bike sit it on the floor sit in his normal chair and peddle away, helps the legs and brings the weight down slowly.

These are only suggestions I’m no doctor, but after nearly seven years I’ve tried a lot of things, also if his iron is low, which can cause fatigue, ask the doctor for ferris sulphate, it’s an iron tablet, again just a suggestion.

Stay safe

Joe

Hi , my partner was so much better physically,  had chemo,  spinal compression,  pe , leg odema now can't walk much at all , psa was 400 now staying at 94 with enzalutamide bones got worse during chemo now bone mets stable and doing well , unfortunately physically not great seems to of made arthritis worse but as long as meds working that's the main thing , it's a awful journey life has changed wishing could go back to the good days I wish you well 

Hi Misses

So sad to read your post as you obviously haven’t had support to enlighten you as to why hubby may be going through these things

Like your hubby mine too was diagnosed in November 21 too with stage 4 and bone mets

Hes on Prostap every 3 months which is a hormone injection which puts weight on, usually on boobs and stomach

Hubb had radiation therapy and it brought his PSA down to 0.09 . Then he was put in another hormone tablet which had little effect ( Bicaltumide) and his PSA is now 40!!

The pain has been so bad he’s been in hospice for a week to try to get pain under control and they have been angels

Hes now on steroids as he had no appetite and also on enzalutamide and lots of strong painkillers.

However, the last two days have seen huge improvement since his pain has gone and steroids have given him back a quality of life

If you want to message me any time please do

We carers often get forgotten looking after our loved ones so please take care of you too xx

Hi, he was on prostap but the sweats were awful, overpowering and no quality of life so went to bicalutamide orally but in his own words he would rather take the chemo again!!  I feel like irrespective of results the pain is a separate issue and managed separately.    His appetite is poor, can only manage a small amount however appears to snack on high sugar foods and endless cups of tea (with sugar obvs).  

May I ask what pain medication your husband is taking presently?? Mine if on 40mg morphine patches changed weekly and oxycodone for break-through pain.  Some naproxen too.

Hi Misses O

Hubby just out of hospice this evening and has a carrier bag full of meds

The main ones he takes for pain are Pregablin which eases nerve pain, and 180mg of mix of slow release oxycodone and immediatel release

He was also started on dexamethazone steroids which have been amazing in helping his appetite and pain

Its really about getting the pain and appetite back under control and tonight I feel I have my hubby back , albeit I don’t know for how long xx

Misses O 

I would push to get off Bicaltumide and on Enzalutamide as it stop the cancer progression so then it’s the existing pain which just needs dealt with if that makes sense x