Dad - Active Surveillance

Hi

Please can you give us more stats - PSA, tumour size etc and I'm sure someone will be able to help.

Regards

Stuart

Hi

As Stuart has mentioned a few more stats would help u to get the best advice

But generally if stats are are low then active surveillance can Def be an option.

I was on AS for 4 years before starting treatment and the tumour did grow in that time.

But I have heard of people being on AS for a lot longer and the tumour still hadn't increased in size or very little.

Don't forget any treatment can come with side effects.

Looks like time on your side so stay on here and do much research.

Steve 

Hi Stuart

Thanks for your response. The only stats u know are as follows:

CPG1

Grade group - GG1

PSA - 8.7

Stage - T2

I hope this is helpful in some way. I don't really understand what it all means. In trying to research but it's quite overwhelming.

Thanks you for your response Steve. I have posted the stats that I know about. I hope your treatment is going well.

Very sorry to hear about your Dad's diagnosis. If he's fit and healthy, and the advice is AS, then I think that's a good option. I had surgery 3 years ago (aged 64) and the outcome was not as straightforward as it could have been. (I was not offered the option of AS.) Putting off treatment until it's really necessary is not a bad idea, and with AS your Dad's doctors should know as soon as it is needed.

That's just my opinion, of course.

Best wishes to you and your Dad

Angus

(more details of my story in my profile)

Ok, so all the stats are very low , AS a good option at least in the short term. see how it goes.

One more thing u could find out but no hurry.

Tumour size in mm,  mine went from 3mm to 13 mm in the 4 years on AS.

At least if u can get that detail then u can keep your eye on any increase.

They should do a MRI scan yearly which would show the size.

Good luck 

Steve

Thank you both for your response. Sounds like treatment will be needed at some point, whether sooner rather than later. 

Best wishes to the both of you.

Hi Frail, My story diagnosed feb 2018 t1c no mo glaeson 3+4 psa 3.6 aged 52 fit and healthy.I decided to go on active survailance 6 monthly psa tests. my psa slowly rised to 5.6 during the 5 years active survailance. when i asked for an mri scan to see the progression if any of the tumour. My result came back that my tumour had now become t3a and was breaking out the prostate. I decide to go for the radical prostectomy as soon as possible and this was carried out April 23 i am now 6 weeks post op. Active survailance for 5 years there was probably very few days I never thought about the cancer inside me knowing that one day i would need to get it treated as it wouldnt disappear on its own.Going through the bone scan again and waiting for the results wondering if it had spread outside the prostate and thinking why didnt i deal with this 5 years ago, my children thinking the same.My post op results are showing clear of cancer thankfully. What ever he decides i wish him best wishes.

Hi Jambo

I really appreciate you sharing your story and really hoping that after surgery things can get better for you. 

Being told not to worry and carry on living a normal life seems difficult after being told you have cancer, I can't imagine what it's like for you, my Dad and everyone else. This isn't my first expeence of cancer unfortunately, the other two times they didn't make it  but I need to remember each case os different. What is prominent from what you and everyone has said is that treatment is pretty inevitable, it's just a case of deciding when, a bit like a waiting game. I guess at the time you make a decision based on what you think is best at that moment in time. Surgery comes with risks and long term effects so I appreciate at 52 it seemed unnecessary.

My Dad is having active surveillance every 3 months, which is interesting that you had yours every 6 months. I wonder if they recommend quantity based on what they predict. It all seems to be trying to predict the future and best course of action.

Hi

Not sure I would read too much into the different  times between AS. My feeling is that it's down to the consultants view rather than anything set in stone. Happy if others have a different view.

Regards

Stuart