When I was diagnosed with gleeson 7 (4+3), I wanted to go on a wait and see treatment because of my age (85 years). My urologist who was treating me for bladder problems advised against it pointing out that the consequences were not a matter of passing away but the very painful way of going.
When I came to this forum I got the advice for which I am gratefuI and started with hormone and radio therapy. The PET scan showed no spread to bones or lymphs and while on a monthly Firmagon injection, I went through 20 daily scans of radiotherapy, at the end of which I had no problems with my bowels and urinary tract,
I am now on the 4th month with the hormones and I have started having sharp lower back pain whenever I turn my body standing or in bed. My doctor wants me to continue on the hormones for three years and at my age I find this excessive.
Has anyone else experienced such back pain with hormones? Thank you.
Well done for getting through the radiotherapy and I’m sorry to hear about your back pain. I am just wondering though, whether tha back pai might be caused by something else other than the hormones? Gardening? Arthritis? Injury? Is it worth getting this investigated? I hope it improves soon.
We had chat yesterday with consultant he went over everything we know. We thought it was about starting chemotherapy and radiotherapy.... We was told due to High risk and the cancer has come out of prostate they will do the best to treat it but it won't be going away they need to keep it a bay.....We are now waiting for chemotherapy Dr to phone us I hope today ......I have been on a rollercoaster that I thought I would never be on it affects everything. I have now accepted ed what is happening,started to look after myself so I can look after my partner and we have enough love for eachother to keep us strong . My partner is fit ,eating healthy and strong.....We said yesterday we are going to enjoy life together.....
I'm happy I have you guys on here.
You and your partner have one another and the strength to get through this journey together. Good luck to you both.
At least he's starting on his treatment journey and you know where we are if you need us.
Everyone here is with you both and good luck again - Best Wishes - Brian.
Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm
Strength, Courage, Faith, Hope, Defiance, VICTORY.
I am a Macmillan volunteer.
Thank you Worried Wife for taking the trouble to read and comment on my story, and I apologise for taking so long to reply.
Yes, I agree with you that my back pain maybe due to other causes such as Sciatica but ever since I was diagnosed, I am sensitive to all events.
I came to the prostate via my bladder operation, where they found the cancer at the mouth of the bladder, at the urithra where the prostate had spread outside its shell. I was told after a Pet scan that although the cancer had spread out to nearby organs, it had not gone to the bones. My pain is not like a disc with a jammed nerve.
I hope as you say, that it is probably due to strain caused by lagging the shopping trolley into the back of the car. I am following it's development and if it lasts more than a month, I'll go back to my urologist and ask for another scan.
I am also not too happy with the side effects of the hormone treatment, particularly the cognitive effects of zero testosterone alongside the gynecomastia, the tyre around my waste, the fatigue, the heat flashes not to mention the loss of interest in arousal which at my age is less important. Frankly, the doctor's requirement to continue with zero testosterone for a couple of years seems to me excessive since life expectancy may outrun the treatment. It is difficult to ask for a second opinion because I need to keep the doctor onside.
Hello Castor, as it’s 8 days since you wrote on here about your back pain and, it seems, it’s no better and it’s likely to be a week or two before you get a GP appointment, why not try to make one to discuss the back pain, the side affects of the hormone therapy etc. he might be able to advise you about the hormone treatment and also help with the back pain? It could be coincidental and not connected with the prostate - especially as the PET scan ruled out bone secondaries. (I assume the PET scan was fairly recent?).
HTH
Whatever cancer throws your way, we’re right there with you.
We’re here to provide physical, financial and emotional support.
© Macmillan Cancer Support 2025 © Macmillan Cancer Support, registered charity in England and Wales (261017), Scotland (SC039907) and the Isle of Man (604). Also operating in Northern Ireland. A company limited by guarantee, registered in England and Wales company number 2400969. Isle of Man company number 4694F. Registered office: 3rd Floor, Bronze Building, The Forge, 105 Sumner Street, London, SE1 9HZ. VAT no: 668265007