Docetaxel - Experience’s

Snap.  Of course we both know the pain of football failures so that helps with the empathy lol

Hope you have a great day Ulls. 

M 

May 22 - The final chemo, as I said above it was supposed to be 10 but has failed but I took the 6th for completion sake really.  Went to plan and I felt strangely calm at it.  I know it’s not working and it just felt a little like a game.  As every I was tired out after and went to bed early I woke with the most excruciating pain yet in this process.  All down my legs and very sciatic in nature.  Actually pain that made me cry.  I doubled my fast acting morphine and that seemed to help after a fashion.  I am used to increased bone pain after chemo but that was something else entirely.  Perhaps just shows how much is going on in the bones just now.  After getting up and sitting in different angles and letting the pain meds work things have settled.  The shape of things to come I think.    I will also for completion sake let you all know how this final 3 week cycle goes for me and also if future me loses some of the side effects etc.  Take care everyone, thank you for your input, good wishes and support.  

Hello Michael, sorry to hear about the excruciating pain. I hope it’s easier this morning?  I also hope your chemo side effects are not too severe this time. Any news on the next plan for you?

Hi worriedwife.  It seems a little better this morning.  I have bunged myself up on pain relief though.  Thanks re other side effects.  I am quite tired and taste is away but other Than that I am ok.  As ever with these things the next plan is dependent on a scan report.  No more chemo is a definite.  I may be able to get Raduium 223 if the results of my CT scan report no soft tissue mets.  However there is an initial concern about 2 spots on my left lung.  Oncologist is hoping that is not mets but is waiting on radiology to report.  No option for PARP inhibitor as I do not have the genetic triggers for it.  So if that is soft tissue mets then we are out of options other than a clinical trial or private immunotherapy profiling and throwing an experimental drug at it.  It’s a crushing blow really as I did think I would respond to the chemo.  However I am staying positive that my lung thing is some old infection scarring and I can have a go with Radium.  I am having radiotherapy single fraction on my neck of femur but this is purely for pain relief.  I am back to the hospital today for a planning session for that. Thank you for your support once again. 

Best wishes

Michael  x 

Hello Michael, good that they are offering the radiotherapy for pain relief on your leg but I am wondering if they can offer more maintenance pain relief to be running along in the background so you don’t have to feel that excruciating pain , hit the morphine so hard and suffer the side effects? Perhaps a word with your medical team?  Although the chemo has not worked, you will always know you gave it a try. Have you looked at the prostate cancer research page about clinical trials etc ? www.cancerresearchuk.org/.../find-a-clinical-trial

Hi Michael

Looking at what you’ve said, your team looks to have your well being in hand, I’ve heard of people having a full body radiotherapy don’t know if that would apply to you. Morphine is some pretty powerful stuff, hope it keeps the pain at bay till they sort something out for you.

Radium 223 is good but I’ve never heard of anyone having it on here, be good to find out if it is offered how it affects you, until then keep positive and we’re here for chats etc.

Stay safe

Joe

Hi worried wife, I am on maintence pain relief with gabapentin and slow release morphine.  I do think I will speak with my hospice nurse this week just as a they are always thinking about how best to manage pain.  I have a particular issues with my neck of femurs being weakened, partly due to running and the high level of bones mets, thrust the RT on the pelvis area.  I keep a half eye on the trials website. I think U will keep a keener eye now.  Thank your for the link and your support it;s much appreciated. 

Michael x x 

Hi Joeven, thank you for taking the time.  If I don’t have soft tissue mets, 50/50 at the moment then I will definitely be on radium and will let keep going here with what’s happening for sure. I didn;t know about full body RT but I will certainly ask,  

Thank you for your support, it helps a lot.  

Best wishes

Michael 

Hi, sorry to see the chemo hasn’t been successful and everything crossed for other treatments. 
I see you are taking morphine for pain relief, is this in liquid form?  my husband used it in liquid form but then at around 4 chemo sessions in they gave him slow release morphine to keep it at bay and to use liquid when excruciating.  

very best wishes x

Hi all

I'm currently on Radium 223. It seems to be working in terms of a reduction in bone and reducing ALP. I'm also combining it with targeted RT. Fingers crossed it will continue but like all these things there are often set backs despite your best hopes.