Hello
I am new to this group, looking for someone who is going through the same as me or has already been through this.
My appendix burst back on mothers day ( not the best mothers day I've had). But I wasn't prepared for what was to come. I was discharged from hospital about 4 days later. Took 3/4 weeks to recover at home. This was only keyhole surgery. Then I thought my life was going to go back to normal..... who knew...
On Monday 8th April, I started a new job, all was going well, then Friday 12th April arrived, I get a phone call at 7am in the morning, from Lister Hospital, the bowel nurse, she tells me I have cancer... Wow, that's one way of telling someone, What took so long to tell me, no-one said anything when I was discharged from the ward back in March, that something had been found.
So my journey starts my life start's spiraling... I have a CT Scan on Friday 19th April, have bloods taken, the scan confirms not spread to my liver and lungs..
Then have a colonoscopy on 27th April. Nothing in the back Bowel. Then I get a phone call from a nurse down in the Hampshire and Basingstoke clinic, arranging appointment with the consultant.
So I am just unlucky I get told, who knew the appendix carried cancer, I certainly didn't think of it... So on the 9th July I will be going in to have a 5 hour surgery, obviously I am going to be cut open, then spend a couple of day's in ICU with a NG Feed tube, Stoma and Catheter. The whole thing scares the life out of me. I was hoping that someone could give me some advice what to expect what is going to happen after. How long the recovery is? Are you still being treated or has the cancer gone? How did you cope? I am scared if and when I get through this, will I ever be the same again, this whole process seems really overwhelming. I know everyone heals and gets better at a different pace . The more I read the more scared it makes me.
Thank you for taking the time to read this.x
Hi
I am recovering from Appendix cancer, I had a bowel resection last September because I had a tumour, they also removed my appendix which got sent to the Christie.
Then I had 4 rounds of chemo, in December I had the results back from the Christie & was advised to have more surgery to eliminate the area and had my ovaries removed.
In April I had CRS & Hipec I was in hospital for 10 days which was shorter than anticipated.
i am 9 weeks post op, my results from surgery were all clear & no further treatment needed.
Going forward regular scans, I’m struggling with new normal, it was a rollercoaster for quite a while & now it’s all gone quiet.
i haven’t posted on here for a long time because I was struggling with it all.
My family & friends have been great, but it helps to support each other on here.
Hi Cmck,
Wow, have you been through it.! I cannot begin to imagine what you've been through.Coming through the other side must also be quite daunting in its own way too. Like, now what.
As you say, friends and family are great but sometimes a stranger, going through something similar really gets it.
I have had rectal cancer and now having adjuvant chemotherapy following on from surgery. I really struggled with round 1 and really not looking forward to round 2. That's how much of a wuss I am... I know I'm not really before the self love police jump in.
But Cmck, take some time to just be. Not having to go to the hospital the whole time can be a bit of a shock too because you have a routine that's safe and familiar even though it isn't very nice. Suddenly all that is over and at the same time all those people who looked after you are gone too.
As you say friends and family have been great but if they're anything like mine... Apart from my husband, they all tell me I'm amazing! At what exactly... Endurance I suppose although I'm not sure being pissed off all the time is the same as endurance.
Anyway, you do you for a bit and see how you get on. If you want to... Don't do anything or do something you like at least once a day. For example, I have just had a chocolate crispy for breakfast...! you know cornflakes covered in melted chocolate of your choice and then set in clumps. My daughter made me some.
Best wishes
Jilly
Hi there
Had appendectomy 6 weeks ago and just had results from histology showing t4 cancer. Referred to Chrsties in Manchester, bit really scary, so good for me to see your post. They also did hemi colectomy and that was clear. How are you now, and what is your next treatment plan?
Thank you, and wishing you well
Shelley
Hi , sorry to hear your situation. Mine is similar, I had appendix removed on 18th June but by open surgery, as it had ruptured and there was puss in the abdomen. They also took part of my colon, found out thus week that the appendix was cancerous, colon was OK. Now waiting for treatment plan from Christies in Manchester, which is 45 miles from home. You will have had open surgery now, and I know how painful that is in the first few weeks. I came home after 10 days, and now after 6 weeks I am getting stronger, able to do short walks with my dog feeling more like myself. I know everyone is different, but you should take it easy and you will improve with time. I am now waiting to hear my treatment plan re possible chemo so also feeling scared. They are not sure if I will need more surgery.
My advice post surgery, you will have to take it easy, I had no choice but once the staples/stitches are removed your strength will start to gradually return. Hope you are recovering well
Shelley
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