Hello - and question about arm pains and frozen shoulder

FormerMember
FormerMember
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Thanks, hard to know where to begin but now a year on from PPC diagnosis, 6 chemo sessions done and halfway through 18 x Avastin treatment. Finally feel ready to try to reach out to others with this condition that no one seems to have heard of. Everything seems so geared up for breast cancer, rightly so, but makes you feel so forgotten about.  Seem to frighten people with the fact that the treatment is described as palliative.  No idea what the future holds. Just been told by occupational health at work that it's too risky for me to return to work.  Covid restrictions and risks are destroying most attempts to feel any normality :(

Suffering from severe pains in left arm, diagnosed with a frozen shoulder - could this be Avastin related?

  • FormerMember
    FormerMember

    Hi MelDan, I was also diagnosed with PPC last year. Don’t feel bad about not knowing about PPC - I lectured on cancer biomarkers for many years and had not heard of PPC even though I knew a little bit about ovarian cancer. It is a rare type. 
    I am about to have the 18th and final treatment of avastin this Wednesday. But before that I have to see my oncologist tomorrow and get the results from the latest follow up CT scan. I have always tried to be really positive, but I can’t help feeling a bit anxious especially as we’ve just been through some sad times with my close family. 
    I think “palliative” is a scary term and doesn’t actually mean what you may think. It can mean giving treatment to improve quality of life and giving support. Check out the definition on MacMillan or similar sites. 
    I get aches and stiffness in my joints, which I put down to avastin as others have mentioned the same things. I had surgery for a shoulder problem several years ago, due to wear and tea. I  wonder if you had an unrelated shoulder problem that has maybe been aggravated by the avastin?
    I hope this helps.

  • FormerMember
    FormerMember in reply to FormerMember

    Thank you! Maybe you're right about an underlying issue. I'm 58 and was just starting to have issues with Arthritis in my hands. Perhaps the Avastin has aggravated an exisiting arthritic joint that hadn't shown up yet?

  • FormerMember
    FormerMember in reply to FormerMember

    Hi MelDan, yes possibly so as I think that avastin has inflamed some of my joints at different times. It can be my fingers, wrist, hip, elbow and I also get aches in my back and ribs at times. A couple of paracetomol usually sorts things out. I also get a runny nose, sneezing bouts and sometimes sores on my tongue. My fingernails seem a bit more fragile now that I am nearly at the end of treatment too. I do feel a bit weary some days, but nowhere near as bad as the fatigue that came with chemo. So, all in all, the side effects of avastin have been quite manageable. 
    I was on sick leave until I recovered a bit from the chemo and while I got used to the single-agent avastin but then I started back on a protracted phased return to work. That was during lockdown, and so of course I was working from home. I decided to leave in the end and my last day was last Wednesday. 

  • FormerMember
    FormerMember in reply to FormerMember

    I wish I had joined this forum ages ago. So good to talk to someone who is going through the same thing.  We're a bit of a rarity!  Best wishes and here's hoping for a good result from your  CT scan

  • FormerMember
    FormerMember in reply to FormerMember

    Thankyou. I’ve got a lot of questions for tomorrow, as well as getting the CT results. I’ve had my last 2 follow up appointments over the phone so it will be good to see my oncologist in person. 
    It is good to hear from others with our diagnosis. I also didn’t think about joining a forum until I was well into treatment and feeling much better than when I first had the shock of diagnosis.

    Although there is some publicity around ovarian ca symptoms these days, I don’t know what tell tale symptoms there are for PPC. I was abroad on holiday when I started to get worried. I saw my GP as soon as I got home and things escalated from there.