Hello. I am 43 and was diagnosed with stage IV pancreatic cancer in March last year. Since my diagnosis I have had six months of Folfirinox, which mostly stabilised the cancer, followed by three months of no treatment, and I am now back on chemo and tablets as part of a medical trial at Addenbrooke’s Hospital. I know I am lucky to still be here considering the stats around pancreatic cancer, but the emotional side of all this is really tricky. I feel as if I am grieving my old life (I used to run marathons and cycle a lot), and some days coping with the new reality of symptoms and side effects feels unbearable. Does anyone have any practical advice that may make the emotional load a little easier, please?
Hi my partner has just finished 6 months of folfirinox and has had a scan
so just waiting for results to come back
his cancer has spread to his liver
can I ask if yours had ?
his emotions are up and down as he too can’t get use to not been able to do what he use to
i struggle to help as I don’t how to make it better
i just keep thinking he’s alive and still here
He struggles with not able to plan things for the future as he just doesn’t know what that future is
Hi Molly, I’m sorry to read about your partner. Yes, mine has also spread to my liver and various other areas. How does your partner cope day to day - does he have any strategies?
I think his way of coping is to plough on with work
think it’s his way of not thinking about it too much, which is hard on him as his energy levels are so low
he eats with plastic fork to try and help with the metal taste
his appetite seems to be good apart from some foods the taste is different but he eats a lot of brown sauce
are u having a lot of side effects of the chemo and tablets?
I did from the Folfirinox, which was brutal, but less so this time. Mostly some digestive issues, nausea and fatigue. Can I ask; does your partner take Creon when he eats and how does he get on with it if so?
No he doesn’t take creon, we were going ask next time we go to see consultant
he gets tummy pain especially after eating but his appetite is still really good
can I ask the name of the trial drug ur on?
it sounds like ur on the same path as him at moment and i want to keep pushing ahead for treatment, as he is not giving up
It’s called Cristal APC and is based as the Cambridge Clinical Research Centre. I was referred by my oncologist. I think there is a web page with more info too, if you Google it.
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