Just diagnosed..

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Hi, I'm Jo, 

Have finally this week got a diagnosis after many tests since July.  They've confirmed I've a malignant lesion in the head of my pancreas and its spread to the liver. I think we realised quite a while ago that this was going to be the outcome, so have been preparing for the result. 

Currently I've very few issues apart from belly discomfort and loss of appetite and weight. I am struggling to sleep & have been pretty anxious (not surprisingly). Am also dealing with my elderly Dad being in hospital, but thankfully other family members are stepping up to help more. 

We've got our first meeting with the oncologist next week and I'm compiling a list of questions to ask - if anyone has any suggestions for questions, that would be great. 

Struggling with the reality of it all right now - keep crying at the thought of what's to come.

  • Hello Jo ( 

    I am Brian one of the Community Champions here on the online Community. I have just noticed your post has gone unanswered. I can't answer it myself as I have a different cancer, however by me replying, your post will be "bumped up" to the top of the page and I hope seen and answered by other members of the group.

    As to your meeting with the oncologist here's a link you might find of use making your list of questions:

    Questions-to-ask-your-healthcare-team.

    On the anxiety front - please do contact our Support Line on 0808 808 00 00 (8am to 8pm 7 days a week). They will be able to help you with this.

    I wish you well with your meeting next week.

    Best wishes - Brian.

    Community Champion badge

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm

    Strength, Courage, Faith, Hope, Defiance, VICTORY.

    I am a Macmillan volunteer.

  • Make sure you get your macmillian support nurse email, you can ask them everything and anything! When my mum was diagnosed I called my macmillian nurse my little angel! Once you have your appointment they review your meds or pain meds & if youl need creon. Look after yourself wishing you well xx 

  • Thanks that was helpful!

  • Thanks, Macmillan have been in contact already! I’ve been offered a Psych appt and been given details for local charity that offers  massages, reflexology and reiki