Chemo after whipples

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Good morning….im at a loss really. My brother was diagnosed with pancreatic cancer end of March and was fortunate enough to have whipples procedure, but needs chemo as 2 out of the 29 lymph node’s where positive. He’s done really well recovering from the whipples procedure, yes he struggled for a few weeks, lost a lot of weight, but he got there in the end. He was just getting back to feeling great when he then had to start his chemo. His first round was Tuesday and he was ok until Thursday and then it totally floored him, he’s been so poorly with it. It’s only his first round and has said he’s not sure if he can continue with it. I have said that I’m sure it can be tweak to make it more tolerable, but I’m not am not an expert. He spoke to his nurses about feeling so poorly and they prescribed a different anti sickness tablet but that did not seem to help, although yesterday he managed to keep water and his medication down, but it’s awful to see him like this…..does this get better over time, he has a good support network around him and we are trying to encourage him to stick with it..but i feel like im pestering him daily with the questions of how is he? can see this group is so supportive of one another with great advise from people.Thank you x

  • Hi  

    I'm sorry to read how poorly your brother has been after having chemo and hope that the new anti sickness tablets are now having an effect. If not, it's important that he gets back in touch with the chemo unit.

    I'm not a member of this forum but noticed that your post hadn't had any replies yet. Responding to you will 'bump' it back to the top of the discussion list again.

    While you're waiting for replies, it would be great if you could put something about your brother's diagnosis and treatment to date into your profile as it really helps others when replying to you and also when looking for someone on a similar pathway. It also means that you don't have to keep repeating yourself. To do this click on your username and then select 'Profile'. You can amend it at any time and if you're not sure what to write you can take a look at mine by clicking on my username.

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  • Hi

    my husband had chemo after the Whipple.He fortunately only had 1 very bad side effect… neuropathy in his hands and feet.After effectively a 9 month remission period, the cancer returned but metatisised in the liver.The 6 months of chemo he then had did cause lots of side effects, rashes, breathlessness, fatigue, anaemia, so 3 months in, the chemo was reduced I.e. one drug instead of two. I would get him to talk to the oncologist and the upper GI CNS team at the hospital. What is the frequency of the chemo? We had 3 weeks on then 1 week off for each cycle.This gave him an opportunity to recover strength wise.Best Wishes

  • Thank you for your reply. Sorry to hear about your husband. My brother has  spoken to the CNS nurses today thank goodness, and he has started to feel better today. He has to call them back tomorrow with the view to him going in to have some fluids intravenously. He’s on once a week then off for 12 days then the next cycle. The CNS are absolutely brilliant and said they will get it modified for him so his next cycle isn’t to bad, but it’s a bit trial and error. Best wishes for your husband and yourself