Inoperable pancreatic cancer

Thank you, I live by these messages. I do feel like at 56 I am too early to be gone, it sacres me the last weeks I may have and how all will wrap up. But I take your message about living in the present. I only I could follow your uplifting message and get rid of anxiety

I understand. I am 51 and my children are 16 and 18. The older one has just started university and i find it hard to think I will not be here for her graduation or possibly even the younger ones graduation from high school. 

But right now my anxiety is on how to live my best life NOW with the time I have. Covid restrictions are driving me crazy......

Have you tried meditation and relaxation? Maybe you could also speak to a counsellor?

I was also diagnosed last July with inoperable pancreatic cancer. I completed 12 cycles of Folfirinox last month. I’m 58 and generally a positive person but sometimes I can’t believe that this is happening to me when I have so much to to live for. My partner and I had so many plans for the future. We’ve booked several treats/trips away/ theatre visits over the next six months for us to make the most of the time I have left but already two have been cancelled due to covid. I’m praying that we don’t have another lockdown.

i don’t know about everyone else but I’m sick of people telling me to ‘keep  positive’ would they keep positive in my shoes? I know that they mean well but I’m already being as positive as I can

Since my original post on here I have only just caught up with all the subsequent comments. I feel a bit more positive. I’ve now had 14 chemos and ‘the beast’ has shrunk but not yet enough for surgery. My oncologist is putting me forward for a clinical trial and they are currently testing my tumour for suitability. He also says that surgery may be possible if the shrinkage continues and the tumour stops ‘leaning’ on the big artery. I live in hope but I know nothing is guaranteed.

I am struggling a bit with neuropathy and they are removing the Oxaliplatin from my chemo for a while to let my hands and feet recover. Anyone else have this?

yes, i have completed 12 cycles of florinox and have been left with significant neuropathy which has gotten worse since completing treatment.  i am struggling, and the GP has started me on pregabalin.  its been about 4 weeks now and the only difference i notice so far is an increase in appetite........

I’ve been on Pregabalin for about 6 months. It was prescribed for nerve type pain in my back and certainly works for that but has no effect on the neuropathy. I have bought a foot massager which helps my feet. I also have a hand massager but it really just squashes your hands so have stopped using it. 

Hi ladies, my story is different to yours. First sign for me was jaundice, two failed ERPGs  and a stent later I had a Whipple procedure which was massive! Then in October I started a course of 12 Folfurinox. Ten down and two to go and it’s been the hardest time. Tweaks were made to make it more bearable but fatigue and diarrhoea remain. 
neuropathy in my hands started from the outset and then my feet joined in. I’m trying to tolerate it as I can’t face more meds. 
Good luck everyone, we can do this

So pleased that you’re feeling a bit more positive. I wasn’t offered the option of removing Oxaliplatin for peripheral neuropathy and managed the 12 cycles. Go well with your treatment x

im also on Pregabalin 450mg per day. It was a game changer for my back pain but makes my peripheral neuropathy worse. I read in the accompanying leaflet that it can cause peripheral neuropathy. I’d rather manage this symptom than experience the horrendous back pain I had.I have had the back pain again over the last few days, the first time in eight months I feel really scared when I have it and worry that my cancer is getting worse.My GP visited today and said that I may have to go to the palliative care unit to manage my pain. I hate that I have to go alone due to covid. As I’ve mentioned before warming oil and and tight fingerless glove help my peripheral neuropathy. 

I have the same anxiety too. I’m 58 with everything to live for