CA125 raised again follow ovarian cyst, ovary & fallopian tube removal

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  1. Bit of a shock call 2 days ago. Quick overview:

Mum passed from ovarian cancer in 2005.

June 2022 had CA125 done which was 31 followed by scan which showed a cyst on right ovary but all normal however, GP requested repeat CA125 in 6 months.

January 2023 CA125 risen to 39

March 2023 scan showed right ovarian cyst had become haemorrhagic

May 2023 repeat scan. Cyst still haemorrhagic. CA125 repeated & risen to 87.

August 2023 - laparoscopic surgery - right ovarian cyst removed, right ovary removed, right fallopian tube removed

25/10/23 CA125 blood test repeated and returned to within normal range - 23

That brings us to today. Had repeat CA125 Wednesday and GP called me this morning to say it’s risen again to 113 so she’s putting me on the urgent suspected cancer list for a scan.

She said it could just be a cyst on the left ovary so I’m keeping everything crossed this is what it is.

Has anyone experienced similar? I’m genuinely shocked as I thought it would remain around 23 but to have risen again has taken me by surprise.

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  • Hello - I have not had this experience but thought I would reply as I have certainly experienced the uncertainty that comes with OC.  I am so sorry that you are experiencing this and the waiting for appointments is pretty grim (no matter how quick they come).   The important thing is - you are being referred on quickly and will get to see the right professionals.   Hopefully, it is just a cyst on the right ovary.  Try and focus on being ok in the moment (that was what helped me last year).  I gave myself a lot of self talk about being ok in the here and now and focussing on that rather than thinking about what may or may not come.   Warm hugs are sent your way. x