I had an US scan to check my coil was on place and it was noted there was free fluid. I was sent for a CT scan which confirmed moderate pelvic ascites but no mass seen and CA125 marker was low. I was referred back to gynae who closed my referral for reasons unknown without being seen!!!. I chased GP who was furious and complained to the hospital and I got fast tracked for an appointment in 2 weeks which I have on Thursday. I have had so much worry over this and have symptoms I have. I am concerned that it is ovarian cancer but everyone keeps saying it can’t be because no mass was seen and markers were low. Has anyone else had this?
Hi Sarahjm
Welcome to the Online Community.
My own cancer was womb cancer so I hope that it is ok to respond.
I can understand your concern and I know that it can be scary to have an urgent referral for further testing. I think the thing to remember is that they always try to rule out the most serious potential causes for your symptoms first and that is what they appear to be doing.
Ca125 is just a marker and it is routinely used in cases where symptoms could be due to a gynaecological cancer. Any level under 35 is considered normal. However on its own Ca125 can not diagnose or rule out cancer. It is somewhat reassuring that your level is low but unfortunately it doesn't completely rule out an issue. That is why you have the referral.
It is also somewhat reassuring that there does not seem to be any mass.
The thing is that something is causing the ascites and it is best to know what is, so that it can be adequately treated. Ascites can exist for different reasons and cancer is only one of them.
I hope that Thursday goes well for you and brings some answers.
In the meantime if talking things through would help, then please do give the Support Line a call.
Jane
