Scaring myself stupid

Hello Hanbailey004957 

I am Brian, one of the Community Champions here on the online Community. I have just noticed your post has gone unanswered. I can't answer it myself as I have a different cancer, however by me replying your post will be "bumped up" to the top of the page and I hope seen and answered by other members of the group.

On the anxiety front waiting for tests, results and appointments is never good. For some extra support please do contact our Support Line on 0808 808 00 00 (8am to 8pm 7 days a week) they will be able to help.

Best wishes - Brian.

Just saying hello. I'm new too. I think may be when your nan and mum went through what they did things may not have been so advanced in diagnosis and treatments as they are now. Your CA125 is low compared to what a lot of people have experienced and it's not a definitive marker for cancer, and it's early days but so hard not to feel fearful and scared. Nothing wrong with you feeling that way. I don't think anyone would not feel that but gradually you adapt and come to terms with whatever. You've done absolutely the right things for your circumstances. Write questions down, have someone with you if possible, insist on being seen and heard and get explanations. I have surgery soon and then the difficult wait to see what the mass is. You will find lots of help here and perhaps phone in, I did, and speaking to one of the MacmIllan nurses helped me a lot. 

I think I know how you feel. Ca125 level of 38. Only a tiny little bit above the cut off. I'm thinking, surely that doesn't mean anything? I'm being sent for an ultrasound. 2 weeks wait. Waiting is awful!!! I've already experienced stage 3 breast cancer and the thought of possibly having to do the whole thing again. Ugh. Exhausting. Can't switch my brain off. The daft thing is, I don't even know if I should be worried. And if I should be worried, how worried should I be? I know. Silly. It's probably fine. But I thought that about the breast cancer before diagnosis. Going to be a long two weeks. Hopefully all will be fine and I'll have worried for nothing. Going to be a sleepless two weeks though. 

Ah thank you so much for the advice and reassurances, I appreciate it so much. I’ve managed to calm down a little now, the first few days after the test were the worst. Hope you’re doing ok and keeping busy during the wait. It’s so tough because part of you wants to do nothing until you know but keeping busy and doing normal things does actually seem to help a little. 

Just wanted to post an update if anyone else was in the same position. So I had my scan today and they were really thorough, said they couldn’t see anything suspicious at all and it all looked normal. I know I have to wait for the official results but it was really reassuring. Just waiting on a couple of other tests and then I’ll see what happens going forward. But I’ve been referred for genetics testing now so am waiting for that appointment. 

I really relate to your story x I am currently waiting for an ultra sound I experienced a bleed after menopause which needs to be explored x currently catastrophising about the outcome x I am glad you’ve had a little good news x