Burning mouth syndrome (BMS)

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Morning all. Has anyone had the above experience?

I have stage 4 recurrent ovarian cancer which metastases on my liver. I had six rounds of chemo with side effects increasing each time but now looking at several weeks free from chemo and just scans to see how well the chemo has worked. I suffered neuropathy quite badly although this is slowly improving. Unfortunately I now have BMS and wondered if any of you have suffered this. My mouth and, particularly my tongue, start to sting either when I eat or drink. I’ve had it for nearly a week now. I have to wait until my food is cold before eating but I’m limited to what I can eat. I drink ice cold water regularly.

Would be most interested to hear from anyone who has thoughts on this ‘burning’ subject

Jaynio60 2 months ago

Hi. There, I have grade 3 high grade ovarian cancer. I've had debulking bk in Dec, I've had 6 rounds of tax and carboplaltin, plus I've had 3 rounds of targeted therapy 15 to go. I've had burning tongue inside of cheeks and lips . It's really hard to cope with. Oncologist has put me on gelclair sachets , which really helps. But makes all food and drink taste awful, like everything laced in bleach. I decided to stop using the sachets and I rinse warm salt water upto 6 times a day . It's 2 weeks since last rounds and it's still very stingy, but improving ea

ch day. I hope this helps you and it eases soon for you . Best wishes .

Whisky mac 2 months ago in reply to Jaynio60

Many thanks. I also use salt water but not as often as you so I think I’ll increase it.
It sounds like you had the same treatment as me first time round and I hope you continue to improve. Very best wishes

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Burning mouth syndrome (BMS)